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Thalassemia Patients and Friends and thalpal © A. Battaglia 2018





54795 Posts in 5812 Topics by 6052 Members
Latest Member: Rochwani Hitesh Ramchandr

A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: DeGeTha - German society for thalassaemia  (Read 7882 times)
Nomad
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In Darkest Day in Brightest Night...
« on: May 04, 2016, 08:13:11 PM »
Dear thalassaemics all over the world,
I am verry proud to announce that we have established the first german thal. society called DeGeTha. Our target is the hollistic support of thalassaemia patients. Most of our members are thalassaemics themselfs. Among us we have thalassaemic doctors, nurses, and people from multiple buisinnes sectors. We also have contact to many pharma companies, hospitals and other associations worldwide. We try to share our knowledge, offer support and colaboration to everyone interessted in thalassaemia all over the world.
Visit us on degetha.org

Kostas -
patience advocate
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sofear
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« Reply #1 on: May 05, 2016, 08:36:17 AM »
Die Webseite sieht noch etwas leer aus. 
--
The website is looking at bit empty at the moment. 
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Nomad
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In Darkest Day in Brightest Night...
« Reply #2 on: May 05, 2016, 02:27:58 PM »
Vielen dank für die kritik...
The website is still in progress. We're working on it...
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sofear
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« Reply #3 on: May 05, 2016, 04:31:53 PM »
I like the style, though. 
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Andy Battaglia
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Will thal rule you or will you rule thal?
« Reply #4 on: May 10, 2016, 05:57:00 PM »
Good luck with the new website. Let me know when it's fully up and I can notify people in the Facebook groups.
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Andy

All we are saying is give thals a chance.
Sharmin
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Little A
« Reply #5 on: May 16, 2016, 04:47:34 PM »
Good work Nomad
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Sharmin
Dharmesh
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« Reply #6 on: May 20, 2016, 05:20:14 AM »
Nice work.

All the best 
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Start listening your body, it always gives signs
Molecule
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« Reply #7 on: December 12, 2016, 01:09:45 PM »
Its simply not true that Degetha is the first thal society in Germany. There is a successful  thal association registered since 2006 with almost a 100 members and a well organized national and international network. The association is called SAM e.V. and includes also other hemoglobinopathies. We are proud to host the next TIF International Conference on Thalassemia in October 2017. More info coming soon
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Andy Battaglia
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Will thal rule you or will you rule thal?
« Reply #8 on: December 12, 2016, 02:40:22 PM »
This is the link to SAM e.V  http://seltene-anaemien-deutschland.de/
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Andy

All we are saying is give thals a chance.
Lokkhi maa
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« Reply #9 on: December 14, 2016, 01:29:35 AM »

Best of luck   
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Lokkhi Maa
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