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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55382 Posts in 5923 Topics by 6236 Members
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This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
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Author Topic: 504 plan for Thal kids???  (Read 3609 times)
Bostonian_04
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« on: August 04, 2016, 01:53:30 AM »

yesterday I learned in Little E's school about 504 plan. The parent that told me about it has her child go for weekly infusion for a medical condition. Since little E goes every 3 to 4 weeks and misses out 1 day of school every 3 to 4 weeks,  I am wondering if it is beneficial to have a 504 plan for her and how to go about it.
Since I am not raised here, hoping someone (hint hint: Andy ) will 1st tell me if 504 plan is good to have and then how it helps a child. currently we do not have issue with E missing school as I work with her home room teacher and explain and so far no issue. But I go thru this process every new school year and always feel anxiety till I get a good response (that I want to hear) from her teacher. Will 504 plan take care of that anxiety? More than that, will it help E? Any suggestions or comments?
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Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #1 on: August 04, 2016, 05:58:16 PM »

I think CAF would be best prepared to advise on this.
Note the new phone #

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
212-279-8090
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
escott@thalassemia.org
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Andy

All we are saying is give thals a chance.
Bostonian_04
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« Reply #2 on: August 09, 2016, 01:24:22 PM »

Andy,
I did not think about writing to CAF. Thanks for the suggestion.
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