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New Jersey Recommendation for Doctor/Center
A message for all parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Topic: New Jersey Recommendation for Doctor/Center (Read 6500 times)
MomI
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Posts: 12
New Jersey Recommendation for Doctor/Center
«
on:
March 26, 2017, 02:30:54 PM »
Hello,
We will be moving to New Jersey soon. Can anyone recommend a doctor or center that they like in New Jersey? My daughter is 4 with Beta Thal Major. I am hoping for a child-friendly atmosphere. She likes going to the one here in Texas because they treat her very nicely and give her toys and she gets to order her lunch from a menu. These small things makes a big difference for her and make the pain less. I am hoping to find something like this in New Jersey.
Thanks
Mom of I
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Andy Battaglia
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Will thal rule you or will you rule thal?
Re: New Jersey Recommendation for Doctor/Center
«
Reply #1 on:
March 26, 2017, 10:51:47 PM »
The closest real thal center is in Philadelphia at CHOP. Eileen Scott at CAF can tell you if there's a more local hospital for ongoing treatment, but CHOP would be the center for annuals visits at the least.
Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
212-279-8090
Fax: 212-279-5999
Patient Services Manager
Eileen Scott
escott@thalassemia.org
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Andy
All we are saying is give thals a chance.
JV
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Re: New Jersey Recommendation for Doctor/Center
«
Reply #2 on:
March 27, 2017, 12:27:46 PM »
MomI, my daughter, who is now almost 7, has been going to CHOP since she was 3 months. We live in Northern New Jersey. If you have any questions or need any help please email me...
James
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MomI
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Re: New Jersey Recommendation for Doctor/Center
«
Reply #3 on:
March 27, 2017, 02:52:00 PM »
Thanks both for the replies.
JV does your daughter go there for the monthly blood draw and transfusion as well?
Thanks
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JV
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Re: New Jersey Recommendation for Doctor/Center
«
Reply #4 on:
March 27, 2017, 05:12:37 PM »
Hi MomI, she goes every 3 weeks for transfusions to CHOP and usually goes to Princeton for labs, draws, etc...
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MomI
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Re: New Jersey Recommendation for Doctor/Center
«
Reply #5 on:
March 27, 2017, 05:15:52 PM »
Can you please send me the place she gets her labs done so i can contact them? thanks
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JV
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Re: New Jersey Recommendation for Doctor/Center
«
Reply #6 on:
March 28, 2017, 12:36:26 PM »
MomI, check your thalpal email
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