• Welcome, Guest. Please login or register.
    August 18, 2017, 06:45:52 PM

  • Login with username, password and session length

Sajid's dove

Tell everyone they can now find this site by typing this into their browser:

thalpal.com

Click to visit us on Facebook


If you have any problems registering or signing in, please send an email to: andy@thalpal.com
Please do not send questions about thalassemia to this address.


Administrators
Andy
Danielle

Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2017





53913 Posts in 5667 Topics by 5689 Members
Latest Member: laurag33

This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
« previous next »
Pages: 1 Go Down Print
Author Topic: Bulls Eye Maculopathy (Macular Cone degeneration) in 6 yr old  (Read 981 times)
catchR
Active Member
**
Offline Offline

Posts: 83


« on: April 18, 2017, 02:26:59 AM »

Dear all,
Has anyone come across Macular Cone degeneration as a side effect of chelation (deferasirox)??

After recent observation of marked change (reading, seeing fine written things) in vision for lil Miss H, we went for vision evaluation, only to learn that both her eyes had Bulls Eye Maculopathy (Cone degeneration).

However, unable to ascertain whether the cause of this, could it be the chelator?? doctors at the eye  center dont know much about side effects from chelators and hence completely rejecting this possibility.

we are in much anxiety & distress. Your inputs will be much appreciated...

History - Please note Lil H's vision was reported completely normal @ ~15 months back eye evaluation.

warm regards,
R
« Last Edit: April 19, 2017, 12:25:17 AM by catchR » Logged
catchR
Active Member
**
Offline Offline

Posts: 83


« Reply #1 on: April 19, 2017, 10:15:43 AM »

Andy, others,
Please advise.

recent ferritin came back as 403ng/ml. Deferasirox dose was roughly ~30mg/kg

warm regards,
R
Logged
Pages: 1 Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines Valid XHTML 1.0! Valid CSS!