• Welcome, Guest. Please login or register.
    November 17, 2017, 10:32:02 PM

  • Login with username, password and session length

Sajid's dove

Tell everyone they can now find this site by typing this into their browser:

thalpal.com

Click to visit us on Facebook


If you have any problems registering or signing in, please send an email to: andy@thalpal.com
Please do not send questions about thalassemia to this address.


Administrators
Andy
Danielle

Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2017





54172 Posts in 5693 Topics by 5770 Members
Latest Member: dl57

This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
« previous next »
Pages: 1 Go Down Print
Author Topic: sickel cell and beta thalasemia  (Read 1189 times)
Mubeen
Active Member
**
Offline Offline

Posts: 52


« on: May 11, 2017, 03:58:47 AM »

My son is suffering with sickle cell and beta thalasemia advised me what should I do?
Logged
BabyRiya
Active Member
**
Offline Offline

Location: USA

Gender: Female
Posts: 39


« Reply #1 on: May 11, 2017, 09:00:26 PM »

May be little more details would help like hbh age etc.  hydrauxia for sickle cells works for some.
Logged
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #2 on: May 11, 2017, 11:33:39 PM »

My son age is 19 months and Hb level 8.
Logged
BabyRiya
Active Member
**
Offline Offline

Location: USA

Gender: Female
Posts: 39


« Reply #3 on: May 12, 2017, 03:29:17 PM »

Did you do the genotype sequencing electrophoresis?  What does it say?
Logged
Andy
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8240


Will thal rule you or will you rule thal?


« Reply #4 on: May 14, 2017, 11:17:45 AM »

The child is beta+ sickle cell. It's difficult to predict the future, but in most cases, it means transfusions will not be regularly required, but precautions against sickling crisis should be taken, such as avoiding high altitudes.
Logged

Andy

All we are saying is give thals a chance.
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #5 on: May 16, 2017, 12:53:17 AM »

Thanks to quick reply me again thanks God bless You always.
Dear I want to ask which complication in future about my son decease? 
Logged
Andy
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8240


Will thal rule you or will you rule thal?


« Reply #6 on: May 18, 2017, 09:32:44 PM »

The biggest danger is the sickling crisis, when the sickle shaped cells cause blood vessels to be blocked temporarily. I suggest that daily vitamin E be given to the child to help prevent this.
Logged

Andy

All we are saying is give thals a chance.
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #7 on: May 18, 2017, 10:43:38 PM »

Dear plz tell me beta thalaseemia can be dangerous? 
Logged
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #8 on: May 18, 2017, 11:04:39 PM »

HBF is 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.
Dear Andy My question is that after one year  use hydra HBF is 35.7% and before use hydra HBF was 37.3%.
Plz suggest me can I stopped hydra or doses minimize?
Logged
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #9 on: May 25, 2017, 11:59:45 PM »

HBF is 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.
Dear Andy My question is that after one year  use hydra HBF is 35.7% and before use hydra HBF was 37.3%.
Plz suggest me can I stopped hydra or doses minimize?
Logged
Andy
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8240


Will thal rule you or will you rule thal?


« Reply #10 on: May 26, 2017, 03:20:02 PM »

Mubeen,

Beta thalassemia is dangerous when two beta thal genes are present.

I would not suggest stopping hydroxyurea unless your doctor says to stop.
Logged

Andy

All we are saying is give thals a chance.
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #11 on: June 12, 2017, 10:10:56 PM »

Dear above reports shows One beta thal present or two beta thal present?
Logged
Andy
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8240


Will thal rule you or will you rule thal?


« Reply #12 on: June 15, 2017, 11:43:44 AM »

It couldn't be two beta thal genes. One beta globin gene is beta thal and the other is sickle cell.
Logged

Andy

All we are saying is give thals a chance.
Mubeen
Active Member
**
Offline Offline

Posts: 52


« Reply #13 on: June 15, 2017, 11:00:01 PM »

Thanks dear
Logged
Pages: 1 Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines Valid XHTML 1.0! Valid CSS!