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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2017





54366 Posts in 5732 Topics by 5877 Members
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This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
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Author Topic: carrier and sickle cell parents can take a chance for pregnancy?  (Read 5961 times)
Mubeen
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« Reply #30 on: July 31, 2017, 11:22:03 PM »

not gaining weight indpite  of giving good diet, maintaining HB 8 to 9 what can be the reason? can we say his is genetically smart because parents are skinny and smart. we are much confused
 
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Mubeen
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« Reply #31 on: July 31, 2017, 11:28:25 PM »

Bone deformities can be observed in sickle beta plus Thalaseemia?
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Mubeen
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« Reply #32 on: July 31, 2017, 11:29:21 PM »

Is it dangerous like major?
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Andy
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« Reply #33 on: August 02, 2017, 03:12:13 PM »

HbE sickle cell varies greatly in outcomes. For some, transfusions are needed and for others, no blood is required. Even without the need for transfusion, when patients have lower than normal Hb levels, there can be slower growth and bone growth can also be affected. A good nutritious diet is essential. Make sure the child develops a taste for fresh fruit and vegetables.
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Andy

All we are saying is give thals a chance.
Mubeen
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« Reply #34 on: August 03, 2017, 12:10:39 AM »

dear should we go for transfusion for better growth and weight?
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« Reply #35 on: August 07, 2017, 09:28:22 PM »

If the Hb maintains between 8-9, transfusions aren't usually started. Even many thal minor children have this problem of slow weight gain when young. Find healthy foods the child likes. Try things like smoothies you can make in a blender using fruits and vegetables. You can find many smoothie recipes online. Wheatgrass might also help.
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Andy

All we are saying is give thals a chance.
Mubeen
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« Reply #36 on: August 07, 2017, 11:21:58 PM »

 5.8.2017             18.05.2017             9.05.2017

Haemoglobin                       7.9                     8.5                          8.0
haemotocrit                         22.8                   34.9                       22.5
red cell count                       3.44                   3.81                       3.45
white cell count                    10.0                   9.4                         7.7
ploymorphs                          45                      27                         40
lymphocytes                         49                      68                         55
monocytes                            04                      03                        03
eosinophils                            02                      02                        02
platelet count                        272                    326                       209
serum total bilirubin               1.9                                                 1.2
serum ALT                            18                                                   20
Serum Alkaline Phosph           198                                                292

Dear no any problem, he is very energetic and no any issues

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Mubeen
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« Reply #37 on: August 07, 2017, 11:45:06 PM »

According to these reports child is quite well , active and happy baby. only problem is that he is not gaining sufficient weight and not interested in eating.
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Mubeen
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« Reply #38 on: August 08, 2017, 10:44:13 PM »

Dear his iron value is just 48
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Andy
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« Reply #39 on: August 11, 2017, 07:35:23 PM »

Is that his ferritin level?

Iron loading will happen with an Hb below 9. Over time, it can even require chelation drugs to remove. Iron supplements should not be taken. They only add to the iron load.
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Andy

All we are saying is give thals a chance.
Mubeen
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« Reply #40 on: September 04, 2017, 11:14:28 PM »

Dear please tell me what should I do for weight gain and proper growth?
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Mubeen
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« Reply #41 on: December 19, 2017, 01:32:08 AM »

Please give some suggestions for CVS. Me and my Patner different trade of Thal. carrier and sickle cell and my son is sickle beta plus?
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Andy
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« Reply #42 on: December 21, 2017, 06:10:21 PM »

CVS should be done between 10-13 weeks. Your doctor should be able to set up an appointment for you.
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Andy

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Mubeen
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« Reply #43 on: December 21, 2017, 10:33:28 PM »

but my question is relate to sickle cell and beta thal?
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Andy
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« Reply #44 on: December 28, 2017, 06:48:45 PM »

CVS is used to see if the fetus carries any of the hemoglobin disorders. It's the same for any condition that is being checked, 10-13 weeks.
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Andy

All we are saying is give thals a chance.
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