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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2017





54119 Posts in 5686 Topics by 5745 Members
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We love you, Lisa.
May you Rest in Peace,
knowing that your legacy lives on,
right here, and through all of us.
You're forever in our hearts.
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Author Topic: Newest Treatments  (Read 1237 times)
dq
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« on: June 17, 2017, 08:52:36 AM »

Hello Andy,

I was wondering if you had any news, documents or sites relating to upcoming drugs.
I've looked into Lentiglobin and Luspatercept however do you know of anything else going on abroad and in the UK.  I understand something in the UK is going through phase 3 trials?

Cheers mate.
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Andy
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« Reply #1 on: June 24, 2017, 12:37:49 PM »

It was recently announced that the phase 3 trials for Luspatercept are now full and underway. There is a very good chance it will be approved by 2020, if not before. This is probably the drug that is in trials in the UK, as they are doing trials in multiple countries.
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Andy

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dq
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« Reply #2 on: June 24, 2017, 06:54:42 PM »

Thanks pal.  What about Lentiglobin? Or is that something completely different?

Cheers
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Andy
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« Reply #3 on: June 26, 2017, 07:08:40 PM »

Lentiglobin is the gene therapy product. That is a full cure and trial results have continued to improve as they have improved the product. 3 patients are now completely off transfusion AND chelation. That latter part is huge, as iron load has continued to be an issue for some patients after bone marrow transplants.
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Andy

All we are saying is give thals a chance.
Pratik
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« Reply #4 on: June 27, 2017, 01:17:29 AM »

Andy,

What happened to that Acceleron pharma's drug? Is it still in development?
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Andy
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« Reply #5 on: June 28, 2017, 12:19:57 AM »

Acceleron and Celgene decided to work together on Luspatercept, the more promising drug.
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Andy

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Pratik
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« Reply #6 on: June 28, 2017, 12:47:20 AM »

Acceleron and Celgene decided to work together on Luspatercept, the more promising drug.
That's good to hear.
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