Thalassemia Beta minor Question on Test Results

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Thalassemia Beta minor Question on Test Results
« on: July 27, 2017, 01:44:49 PM »
I am a new member and joined to learn about Thalassemia.  I was diagnosed at 16 years old.  My mother immediately put me on iron supplements since my doctor used the word anemic.  I had a bad reaction to them and when she called him he told her she could have killed me.  She was angry he said nothing about avoiding iron.  I am now 52 years old.  Below I am providing some of the information on a blood test I had this year.

CBC (INCLUDES DIFF/PLT) AT
WHITE BLOOD CELL COUNT 5.1 3.8-10.8 Thousand/uL
RED BLOOD CELL COUNT 5.34 H 3.80-5.10 Million/uL
HEMOGLOBIN 10.9 L 11.7-15.5 g/dL
HEMATOCRIT 34.8 L 35.0-45.0 %
MCV 65.3 L 80.0-100.0 fL
Verified by repeat analysis.
MCH 20.4 L 27.0-33.0 pg
MCHC 31.2 L 32.0-36.0 g/dL
RDW 17.4 H 11.0-15.0 %
PLATELET COUNT 199 140-400 Thousand/uL
MPV 14.4 H 7.5-12.5 fL
ABSOLUTE NEUTROPHILS 2876

VITAMIN B12/FOLATE, AT
SERUM PANEL
VITAMIN B12 1965 H 200-1100 pg/mL
FOLATE, SERUM >24.0 ng/mL
Reference Range
Low: <3.4
Borderline: 3.4-5.4
Normal: >5.4
PERFORMING

I was told by a midwife that I have Thalassemia Beta Minor and need high amounts of folate and b12.  I take 1,000 mg of sublingual methylcobalamin B12 and about 1200 mg of methylfolate (sometimes more).  I am not under the care of a hematologist; I see a general practitioner.  Is it normal for a person with Thalassemia to have high MPV and high B12?  Are the other numbers typical as well?  Any advice would be very much appreciated.

Thank you for letting me join this group and for helping me.
« Last Edit: July 28, 2017, 04:56:10 AM by mommy »

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Offline Andy Battaglia

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Re: Thalassemia Beta minor Question on Test Results
« Reply #1 on: July 31, 2017, 09:54:45 PM »
A high MPV is a common feature of thal minor. High B12 is not, but is actually beneficial for thal minors. During pregnancy, many thal minors take as high as 5 mg folate daily. This helps to keep the Hb up. Also, if you are not already taking it, add natural vitamin E to your regimen, as it helps to combat the clotting issues often found in thal minor, which can lead to miscarriage.
Andy

All we are saying is give thals a chance.

 

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