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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2018





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Author Topic: Advice on BMT  (Read 1243 times)
Fahed_FN
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« on: December 29, 2017, 09:10:47 AM »

Dear Friends,

My 4.5 years old thal major son has an HLA matched sibling who is 6 months old now, and now is the time to take a decision and put a treatment plan.

I need your kind advice especially from parents whom have already conducted BMT for their children, i am concerned mainly about success rate, side effects (Fertility) and Chemo intensity.

Please share your BMT journey experience and kindly give me any advice which may be helpful (including doctor/hospital recommendation).

Thanks i advance.
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Fahed_FN
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« Reply #1 on: January 18, 2018, 06:36:43 AM »

Hi Friends,

Any suggestions please?
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zahra
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« Reply #2 on: January 22, 2018, 11:15:21 PM »

Are you sure this is the right time?
One factor that is important is the size difference between donor and recipient.  Larger size of donor means better dose of bone marrow can be harvested safely which means better chance of engraftment.
If you chelate regularly and transfuse regulay you can wait till the suze difference isnt so huge.
I am no expert. Just my observation of a few cases.

Zahra
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Andy Battaglia
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« Reply #3 on: January 23, 2018, 08:37:53 PM »

One thing I think can be very helpful is to contact Dr Sodani with any questions and concerns. http://www.curethalassemia.org/free-advice-on-bmt/
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Andy

All we are saying is give thals a chance.
EugenioLaMesa
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« Reply #4 on: January 25, 2018, 02:47:51 AM »

I also suggest to read all the FAQ written by Dr. Sodani:
http://www.curethalassemia.org/faq/
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Eugenio La Mesa
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Fahed_FN
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« Reply #5 on: January 27, 2018, 01:55:36 AM »

Thanks friends for your replies, i will seek an advice from Dr. Sodani.

I am however more interested in the experience of parents whose children have done BMT, i know that Johns Hopkins are successfully using low chemo approach for Thals, but unfortunately i cannot afford to travel to USA so i am seeking an advice if this low chemo approach is experienced somewhere else. I really want to minimize the chemo effect on my son as much as possible.
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