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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2018

54567 Posts in 5768 Topics by 5955 Members
Latest Member: JoFang

We love you, Lisa.
May you Rest in Peace,
knowing that your legacy lives on,
right here, and through all of us.
You're forever in our hearts.
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Author Topic: Hb e/beta thalassemia is major or intermediate? Please help  (Read 143 times)
New Member
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Posts: 1

« on: May 11, 2018, 04:03:18 AM »

Hi i am new here this is my first post .i am 19 years old.I have Hb e/beta thalassemia. My hemoglobin is close to 5-9. currently 6.1. I have never taken blood transfusion. My only problem is that my weight is not gain. my weight is only 39kg & I'm very skinny. help me please.

1)I have thalassemia major or intermediate?
2) How to I gain my weight?
3)Will the Enlarge spleen be any problem?
4)Can need transfusion in future?

(sorry for my bad English)
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Location: In my heart, Maldives

Gender: Male
Posts: 8389

Will thal rule you or will you rule thal?

« Reply #1 on: May 14, 2018, 09:03:18 PM »

You are thal intermedia and unless you can raise your hemoglobin level, you will need transfusion. Since you are in India, I would suggest you contact Dr Vijay Ramanan and ask about his novel therapy, which is yielding good results in many people similar to yourself. In addition to raising the Hb so patients don't have to transfuse, his therapy is showing good results in patient growth, as well. Go to this link to find contact information, https://www.vijayramanan.com/


All we are saying is give thals a chance.
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Posts: 56

« Reply #2 on: May 17, 2018, 12:24:13 AM »

Dear Andy please suggest any Doctor in Pakistan (Lahore) for the same problem of my son age two year
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