• Welcome, Guest. Please login or register.
    December 15, 2018, 11:07:38 AM

  • Login with username, password and session length

Sajid's dove

Tell everyone they can now find this site by typing this into their browser:

thalpal.com

Click to visit us on Facebook


If you have any problems registering or signing in, please send an email to: andy@thalpal.com
Please do not send questions about thalassemia to this address.


Administrators
Andy
Danielle

Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2018





54857 Posts in 5824 Topics by 6069 Members
Latest Member: Revia

Forum Tip: 
Put your birthdate in your profile, under "Forum Profile Information," and it will automatically come up on our calendar.
« previous next »
Pages: 1 Go Down Print
Author Topic: Research Opportunity for US Patients  (Read 2939 times)
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8499


Will thal rule you or will you rule thal?


« on: May 30, 2018, 03:51:37 PM »

For US residents.
We are looking for a total of 24 patients to do a 1 hour web-assisted phone interview in the next 3-4 weeks. Additionally, there is a 30 minute homework to complete before the interview. The discussion will be about their journey from diagnosis to current day including their medications and relationship to healthcare professionals. As an incentive we are offering $195 to patients ($130 for the interview + $65 for the homework).
https://www.liberatingsurveys.com/en/enquire/139
Logged

Andy

All we are saying is give thals a chance.
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8499


Will thal rule you or will you rule thal?


« Reply #1 on: June 14, 2018, 11:28:19 AM »

"...now looking to speak to caregivers of children diagnosed with Beta Thal as well. "

We are conducting telephone interviews with Patients and Carers/Parents of people living with Beta Thalassemia to learn more about your experiences and your journey from diagnosis and initial treatment to present day.
https://www.liberatingsurveys.com/en/enquire/139
Logged

Andy

All we are saying is give thals a chance.
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8499


Will thal rule you or will you rule thal?


« Reply #2 on: July 03, 2018, 05:38:42 PM »

They are still trying to get a few more caregivers of children to participate. Specifically, they are looking for caregivers of thal intermedia patients who have transfused during the past 12 months.
Logged

Andy

All we are saying is give thals a chance.
Danny.H
Junior Member
***
Offline Offline

Gender: Female
Posts: 102



« Reply #3 on: July 26, 2018, 03:04:06 AM »

I wish one of this days they can create a survey for minors
Logged

Daniela
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8499


Will thal rule you or will you rule thal?


« Reply #4 on: July 28, 2018, 02:37:07 PM »

One of the recent study opportunities did recruit minors, as well. I'm seeing more of these surveys, etc because of tax laws that are favorable to research of orphan diseases. I'll try to keep the group posted as requests are made.
Logged

Andy

All we are saying is give thals a chance.
Pages: 1 Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines Valid XHTML 1.0! Valid CSS!