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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2018

54908 Posts in 5834 Topics by 6080 Members
Latest Member: mareeya

This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
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Author Topic: How to approach GP for alpha thalassemia testing?  (Read 179 times)
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« on: January 09, 2019, 11:13:49 PM »

I've been dealing with anemia since I was about 2 (I'm now in my 20s). My mother, brother and maternal grandmother have all "battled" with anemia as well. I had iron pills prescribed various times among the years but it never improved. My GP tested my iron levels which came back normal. So she then ordered a hemoglobin electrophoresis which also came back normal, but with a note saying that there needs to be further testing to rule out alpha thalassemia or iron deficiency

Im leaning towards alpha thalassemia since my iron levels are normal. My question is, what test should the GP be conducting to confirm/rule out alpha thalassemia?
Andy Battaglia
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Location: In my heart, Maldives

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Will thal rule you or will you rule thal?

« Reply #1 on: Today at 04:39:42 PM »

It would not be beta thal, since the HbA2 is low. Beta minors have a high HbA2. It does not look at all like you have iron deficiency. In addition to the normal iron numbers, your RDW is normal and it is high in iron deficiency. Your MCV is normal, but your Hb is low. I think if it's thalassemia, it's alpha thal carrier status. In adults, it usually will take a DNA analysis to determine if alpha thal is present.


All we are saying is give thals a chance.
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