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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55248 Posts in 5898 Topics by 6191 Members
Latest Member: Smoh

A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: BMT of my 2 year Old Kid  (Read 5976 times)
kaleem
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« Reply #15 on: March 26, 2019, 04:19:27 AM »

today doctor told that due to low hb of 7.3 the kid needs blood transfusion.. will also do his chimerism to check percentage of donor cells.. its day plus 90..
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Fahed_FN
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« Reply #16 on: March 27, 2019, 11:16:16 PM »

Dear Kaleem,

just a quick question since i did not pick up the journey since the beginning, who was the donor and how much matching?
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kaleem
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« Reply #17 on: March 28, 2019, 12:04:26 AM »

thanks fahed.. donor was his 10 year old elder sister and 100% HLA match.. he is taking Cyclosporine, Eltrombopag, Fluconazole, Acyclovir and one antibiotic.. no steroids...
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Syeda
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« Reply #18 on: March 01, 2020, 10:24:38 PM »

Hi Kaleem,
Wanted to check in how things are going with your child now after several months have passed- have things improved?
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kaleem
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« Reply #19 on: March 04, 2020, 01:11:02 PM »

transplant was unsuccessful.. the kid is now dependent on blood transfusion again every 3 to 4 weeks.. he is otherwise fine but the stool color and composition is still not like it used to be pre-transplant.. are you planning for transplant?
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