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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55404 Posts in 5929 Topics by 6248 Members
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Author Topic: BMT of my 2 year Old Kid  (Read 11334 times)
kaleem
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« Reply #15 on: March 26, 2019, 09:19:27 AM »

today doctor told that due to low hb of 7.3 the kid needs blood transfusion.. will also do his chimerism to check percentage of donor cells.. its day plus 90..
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Fahed_FN
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« Reply #16 on: March 28, 2019, 04:16:16 AM »

Dear Kaleem,

just a quick question since i did not pick up the journey since the beginning, who was the donor and how much matching?
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kaleem
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« Reply #17 on: March 28, 2019, 05:04:26 AM »

thanks fahed.. donor was his 10 year old elder sister and 100% HLA match.. he is taking Cyclosporine, Eltrombopag, Fluconazole, Acyclovir and one antibiotic.. no steroids...
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Syeda
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« Reply #18 on: March 02, 2020, 04:24:38 AM »

Hi Kaleem,
Wanted to check in how things are going with your child now after several months have passed- have things improved?
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kaleem
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« Reply #19 on: March 04, 2020, 07:11:02 PM »

transplant was unsuccessful.. the kid is now dependent on blood transfusion again every 3 to 4 weeks.. he is otherwise fine but the stool color and composition is still not like it used to be pre-transplant.. are you planning for transplant?
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Himanshu Kumar
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« Reply #20 on: April 12, 2020, 04:16:33 PM »

Dear Kaleem,

Unfortunate that the BMT has been unsuccessful. Where did you get the BMT done. What was the reason behind failure, what was the chimerism % after transplant. And most importantly how is the child doing.

Regards,
Himanshu
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Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.
kaleem
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« Reply #21 on: April 15, 2020, 04:10:44 PM »

BMT was done at The Aga Khan University Hospital, Karachi Pakistan. During BMT kid got a very diarrhea which did not stop even at the time of discharge. Chimerism within one month of BMT was 95 percent. At the end of 3 months it declined to 21 percent. Doctors didn't say any specific reason. But based on our observation may be Gender missmatch. Because two other BMT at same hospital also failed, I noticed that donor and recepient were of opposite genders..

But I am not sure why it failed. Our kid is now otherwise completely active and fine.
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