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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55095 Posts in 5864 Topics by 6145 Members
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A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: Study Finds Thal Minors do Have Symptoms  (Read 192844 times)
Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #180 on: April 13, 2017, 06:09:52 PM »

A daily vitamin usually has insufficient amounts to do enough good. I have compiled suggestions at http://www.thalassemiapatientsandfriends.com/index.php/topic,4890.msg46774.html#msg46774
These are adult doses, so adjust for the child's age and weight, usually 1/4 to 1/2 of the adult dose. Most important are components of red blood cells, like folate and B vitamins and antioxidants, especially natural vitamin E. Avoid any supplement containing iron, unless iron deficiency is also present, as indicated by a full iron panel of tests.
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Andy

All we are saying is give thals a chance.
jsbhavsar
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« Reply #181 on: October 13, 2017, 06:50:50 AM »

In my very detailed evaluation with a Hematologist and Cardiologist together on 28th September, nothing much came out.

Reticulocyte count 7
Hb 9.9
HbF 6.3%
Hb A2 5.8%
MCV 60
Platelet count 319
WBC 11900
RBC 5.89

HEMATOLOGY REMARKS: THALASSEMIA INTERMEDIA

CARDIOLOGY REMARKS: 2D ECHO is Normal, repeat every 3 years.


Hematologist is of an opinion that all symptoms I explained in 45 minutes are of beta thal intermedia. Clinically and pathologically the case is Intermedia. Yet, the Hematologist recommended we should not start Hydroxyurea tablets for now.

The recommendation for next 1 year:
Daily Folic Acid 5mg lifelong
Monthly B12 shot as the case maybe
D3 supplement as the case maybe
Thyroxine as suggested by Endocrinologist

Repeat consultation after 1 year to reevaluate hematology parameters.

Chest pain (angina or myalgia type pain) in chest bones below throat till esophagus
At times hard breathing continues even now
Discomfort on left side due to spleen
Poor blood circulation in body, worst than last 4 months
Low energy levels after 5pm, these 10-12 days have been the worst
My Palms look more palish white than 4 months back
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Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #182 on: October 14, 2017, 01:41:38 PM »

I think most of the symptoms listed at the bottom of your post are related to the low oxygen that comes with low Hb and to the high turnover of RBC's which enlarge the spleen.
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Andy

All we are saying is give thals a chance.
jsbhavsar
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« Reply #183 on: October 16, 2017, 03:33:24 AM »

Lets see how the current homeopathy medicines work:
i) Arsenic Album 30c dilution 7 drops in water twice daily
ii) Crotalus Horr 30c dilution 7 drops in water twice daily
Above two are considered medicines for hemolytic anemia. Materia medica / repertory does not have thalassemia specific medicines.

iii) Reckeweg R7 combo 10-12 drops in water twice daily
for liver, gall bladder etc

iv) NL-4 gall b tone drops 10-12 drops in water twice daily

v) SBL Acidum Uric 30c 8-10 drops in water twice daily



My Next selection will be:

1) Arsenic Album 30c dilution
2) Nux Vomica 30c dilution
3) Ceanothus Americanus Q mother tincture
4) SBL Acidum uric 30c dilution

Will keep you posted.
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