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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019

55214 Posts in 5890 Topics by 6179 Members
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Author Topic: Vitamin E and Folic acid  (Read 2024 times)
Lokkhi maa
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Location: Bangladesh

Gender: Female
Posts: 411

« on: August 31, 2019, 03:38:45 AM »

Dear Andy,

My 5 yrs old child daily taking 200 iu Vitamin E and 5mg Folic acid.

But recently her doctor advised not to continue vitamin E regularly and folic acid 15mg per day.

Doctor also said she may take vitamin E 1day gap.

Her serum ferritin is now 1005.

Last month we have not give her Asunra for supply issue.

If not continue chelaton therapy regularly then it will be harmful for my child?

« Last Edit: September 07, 2019, 04:46:55 AM by Lokkhi maa » Logged

Lokkhi Maa
Andy Battaglia
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Location: In my heart, Maldives

Gender: Male
Posts: 8626

Will thal rule you or will you rule thal?

« Reply #1 on: September 11, 2019, 03:11:23 PM »

It really depends on what the child is taking. If the vitamin E is natural and not synthetic, 200 IU is fine. If it is synthetic, throw it out and find natural E.
If the child is taking folic acid and not folate, the dosing should not be high, as folic acid can build in the body due to its slow processing by the liver. If the child takes folate, a dose of 1-2 mg daily is sufficient. If it's folic acid, no more than 400 mcg should be taken daily.

Chelation is mandatory for transfusing patients. Iron will damage the organs if not removed. If the iron load is under control, lower doses of the chelator can be used.


All we are saying is give thals a chance.
Md. Abdul Hakim
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Posts: 7

« Reply #2 on: September 28, 2019, 03:12:06 PM »

Dear lokkhi maa
My name is A. Hakim from bangladesh.
My little princess age 18 month recently diagnosed E/ beta thalassemia.her hb level is 8.3g/dl. We are feeling very  helplessness. Do you know please where will we found wheat grass?
« Last Edit: September 30, 2019, 01:16:22 PM by Md. Abdul Hakim » Logged
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