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This is Thalassemia Patients and Friends,
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Lisa Cammilleri.
(1970-2004)
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Author Topic: Delta beta thalassemia  (Read 80 times)
Legopot
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« on: May 19, 2020, 04:59:16 AM »

Hi,

I'm from Malaysia. Through electrophoresis tests, my husband is beta carrier while I'm unaffected.

However, my 12 month old baby's hbf reading is 8.8% which makes a delta-beta diagnosis. I was told that it's considered beta intermedia because it's not major by definition but also doesn't fall into the classic trait readings.


Please help me out but sharing with me what to expect, how bad can it get, and what to look out for.  I'm advised to ignore, live life as per normal but to go back for another reading at 1.5 years old.

I feel terribly lost as I always thought unaffected + trait will result in a carrier ar most. Im feeling terribly overwhelmed seeing delta beta can be as severe as major thalassemia. Any info at all, will be helpful.
 
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