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Author Topic: my son is now imporving at good rate. thal_cure  (Read 23187 times)
kabir_love
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« on: May 10, 2007, 02:47:57 AM »

hi everyone. now its been a long time my son taking rodex and now he is very well, condition very good , healthy and HB  is increasing constantly we check after 1 month gap.

we didnt need to go for any blood transfusion till now he is 1.2 years.

i really confirm you guys he was detected thal. major  by every hospital here even the best ones in india. now after this treatment and i thank to god that my son is in good state. and now doctors are saying he must be thal. intermida or other, this is bull shit. that time these docs. said u see just 2 week he would need transufion and now its 8 months......

i hope every one should get well soon.

love and regs
micky
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« Reply #1 on: May 10, 2007, 03:58:14 AM »

Hi mickey,

What is his Hb now?

Take care, Peace!
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Manal
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« Reply #2 on: May 10, 2007, 05:32:23 PM »

Hi Mickey

Congratulations

Could you please tell us whom to contact if we want to know more about the rodex???

Manal
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kabir_love
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« Reply #3 on: May 11, 2007, 07:12:58 AM »

hb level of my son when we found out
oct-2006 hb level- 7.7
dec-2006 hb level-6.7(just started rodex, 8 months course dec-aug)
jan- 2007 hb level-6.2
feb-2007 hb level-6.1
april-2007 hb level-6.2
may 2007 hb level-6.5
JUNE-JULY 2007    level- 7.6
JULY- 7.4
AUGUST 6.6  ( i dont think the report is correct as my son physical position is much more beter i had talked to doctor so ill do the re test again.. but im not scared as ill see after the re  test.)
novermber(07)- 7.2

this is how the hb level is goin as per reports. but this condition i can see  improvment. im very happy atleast my son is fine.

"" hi i m just modifing this column as per test date i had done.""". course for rodex is now for 2 yrs..

as the last increase in hb level (june-july) is i think more of because of DR. mulkrajdas .. by his healing therepy for which now i had explained in my new post please read that.
« Last Edit: November 07, 2007, 04:51:59 AM by kabir_love » Logged
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« Reply #4 on: May 11, 2007, 08:25:14 AM »

Hi Mickey,

Hb of 6 is nothing to get excited about. Your son is showing typical signs of being Intermedia that his Hb is hovering around 6-7.

You have already told us that your child was diagnosed Major and not Intermedia. However, know that Intermedia is a bit complicated and does not show up in the regular methods that are used for diagnosing the type of Thal. unless a DNA test has been carried out to identify the exact Intermedia mutation.

So, unless your child has undergone DNA, it is most probable that he was misdiagnosed as Thal. Major.

Anyway, the good news is that Intermedias respond nicely to HbF inducers that make the overall Hb go up. This is exactly what is happening to your son. It is most probable that Rodex is nothing more than a HbF inducer.

I wish you all the best, that this medicine is sufficient for your son that he does not require frequent blood transfusions and I hope that you will be able to manage his Intermedia superbly with the help of this medicine.

Take care, Peace!
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« Reply #5 on: May 11, 2007, 08:26:51 AM »

Hi Mickey,
Who is measuring the Hb level of your son? is it the Doctor's office? Since there is No scientific paper that I have seen that suggest "Rodex" can cure Thal, I will suggest that get your son's Hb level checked by an independant Lab that is not associated with the Doctor who is doing the treatment.
Please do not get me wrong. I hope and pray that your son's improvement is real and he grows up as a healthy boy.
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Manal
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« Reply #6 on: May 11, 2007, 09:17:07 AM »

Thanks Mickey

But could you send me his e mail or the center email please

Manal
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« Reply #7 on: May 12, 2007, 01:33:05 AM »

Hi Mickey,

  with sajid and bostonian,get your son''s DNA checked,if it's available for you,i also think that your son could be an intermedia, but hb of 6 is NOT GOOD for a growing age kid,keep a close watch for any kind of bone deformation, and try hydrea if you can.

 

ZAINI.
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« Reply #8 on: May 12, 2007, 08:08:39 AM »

Mr. Mickey,

I sincerely advise you to consult a specialised thalassemia center for your son treatment. I am not saying Rodex is not working for you but HB of 6 is not a good sign.

Regards
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« Reply #9 on: June 14, 2007, 08:26:21 AM »

hi every one
 as what sajid is saying about the DNA TEST. this test i had done already when he was confirmed as thal. major by his blood reports as hb was goin down , then we went to apollo hospital there they had done NAT TEST ( they said is a new test they just started for DNA to confirm for thal. major or intermediate)

for the blood test. i had never done with the doctors lab. i had done with other well know pathology labs for my confirmation also.

now as my son is getting his teeths out so this time child get little irritation and also he goes donw so i m waiting for another week then ill do the test. again

regs
mikcy
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kabir_love
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« Reply #10 on: June 14, 2007, 08:34:19 AM »

i had consulated with the doctor(mathur) as some time my son seems red and some times pale little yellow. and for hb level last was 6.5  we consultaed with him , he said that if its showing 6.5 then in actual its above 7, but as bone marrow is not producing and goin his function properly so this medician which we give , his bone marrow takes it and then work and increase the hb level. now its the last 2 months of his medican course.

till now we had not done transfuion not even single and son is very very active , no bone disformations and spleen are perfect as we keep checking him with other child speclist docs.

i hope now hb level is about 7 or above as per his conditions. rest ill post when we will get this test done next week.
regs
micky
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« Reply #11 on: June 16, 2007, 01:32:49 AM »

Thanks for the update Micky!

Wish you all the best luck

Take care, Peace!
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kabir_love
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« Reply #12 on: June 16, 2007, 02:48:23 AM »

just got test result.
hb level now- 6.6 (after 2 months before 6.5)

as per doctor it should be more than 7 but as bone marrow and body is consuming the medican at more rate so thats y. and according to him the formula is working at good rate.

regs
micky
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kabir_love
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« Reply #13 on: June 19, 2007, 07:05:01 AM »

HEY..
WELL ITS VERY MUCH HARD FOR MANY OF OUT THERE BELIVEING IN ANY OTHER CURES APART FROM ALOPATHY TREATMENTS... SO ALL THIS TIME HERE I HAD WONDERED MANY PLACES FOR THE TREATMENT OF MY SON TO LOOK FOR ANY POSSIBLE CURES. CAUZ DOCTOR LEFT ME WITH ONLY CHOICE OF BOOLD TRANSFUSION WHICH I JUST COULDNT ACCEPT LIKE THAT TO GIVE MY SON THIS LIFE..

I CAN FEEL WHAT OTHERS HAD BEEN THROUGH. BUT WHAT I HAD BELEIVED AND SEEN THAT THERE ARE THINGS THAT WORKS BUT SCIENCE HAVE TO ANS. FOR THAT AND WHEN IT REALLY WORK AND REPORTS LOOK BETTER THEN DOCS GIVE OTHER REASON AND CHANGE THERE VERDICTS TO OTHERWISE.

MY SON DIGNOSE AS THAL. MAJOR  CONFIRMING DNA TEST AND OTHER BY BEST DOCS IN INDIA. NOW BY SOME TREATMENT IM TAKING FROM A  HEMOPATHIC DOC. THEN THESE DOCS SAID IT WONT WORK AND YOU CAN SEE YOUR SONS CONIDITION IN A WEEK TIME ONLY.

NOW ITS 8 MONTHS AND REPORTS ARE BETTER SO NOW THEY SAID HE MIGHT BE INTREMIDEATE, ANYWAY.

NOW IN ESCORTS HOSPITAL  I HAD SEEN A DEBATE ON TV FOR THALS , THEIR DOCTORS SAID THEY HAVE A PATIENTS WHO ARE ON AYURVADIC TREATMENT FOR 15/10 YEARS NOW AND TILL NOW  NO  B.T  FOR THEM,, THERE HB LEVELS  IS INCREASEING AND STABLE NOW 15 YRS HAD PASSED FOR THESE PATIENT.  HE WERE THAL MAJOR.. COST FOR THIS TREATMENT 300 US/MONTH.

DR. MUKUL DAS ( AN INDIAN CHEMICAL SCIENTIST WAS WORKING IN GERMANY HIS SALARY WAS ABOUT HALF MILLON USD/YR) GOT SOME POWERS TO WORK WITH ENERGY THAT SURROUNDS US  AFTER DOING MEDITATION FOR 30YR, NOW WORKING AND CURING PEPOLE WITH DISEASES WHERE SCIENCE FAILS.. FOR FREE. IN  MUSSORIE.. JUST BY TOUCHING THE SOURCE OF DISEASE AND TRANSFERING THE POWERS.

I VISTED DR. MUKUL DAS AND MET WITH PATIENTS EVEN SERNIOR DR. FROM VARIOUS PART OF INIDA TAKING TREATMENT AND GETING GOOD RESULTS. THIS TREAMENT NOW HAD BEEN UNDERTAKEN BY GOVERMENT AND INDIAN TECHNOLOGY FOR RESEARCH  THAT HOW IS THIS WORKING.. I MET THAL. PATIENT ALSO AND THERE HB TEST WITHOUT ANY MEDICION OR BT. IS INCREASE CONSTANTLY AFTER EVERY 10 DAYS TEST.  POLIO PATIENTS LIMBS AND BONES TAKING THERE PALCES BACK TO NORMAL.. PARALISES PATIENT MOVIGN THE PARTS IN JUST 5 DAYS- 7 DAYS... AND CHILDREN BORN WITH DELAYED MILSTONES( HAVE SLOW GROWTH) STARTING SHOWING RAPID ACTIVITES.

SO AS WHAT I HAD SEEN IF THIS IS POSSIBLE THEN MANY THINGS WHERE SCIENCE CAN NOT DO ANYTHING ARE POSSIBLE AND THERE IS NO ANS. FOR THESE THINGS.

I REALLY PRAY THAT MY SON TREATMENT WORKS QUICKLY SO THAT MANY OF U ALSO GET BENEFITS AND UNDERGO THIS CURE....

SCIENCE ="WHAT IS IN OUR KNOWLEDGE"..  DO WE KNOW EVERYTHING NOW??
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kabir_love
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« Reply #14 on: June 21, 2007, 05:38:11 AM »

please explain this:

WHILE TAKING TOUCH THEREPY FROM DR. MUKUL DAS MY SON 1.2 YRS OF AGE, I SEE THAT HIS COLOR CHANGES TO YELLOW AND AFTER THAT STARTING GETING REDISH. THE CHANGE IS SO NOTISABLE THAT ITS LIKE A CHAMILION......

NOT JUST ONE TIME,,, NOW EVERY TIME I TAKE IT.  HE NEVER PUSH PRESSURE AS IT STOPS BLOOD FLOW JUST TOUCH HIS HAND AND BACK BONES.  AND HIS WHOLE BODY AS IF TAKING ALL THE THING INSIDE AND GETS YELLOW AND AFTER 5 MINS ITS DONE. THEN IN  2-3 HR GET REDISSH  AS IF HB SHOOTS UP.

ANYWAY ILL SEE THE RESULTS IN 8 DAYS HE SAID.


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