• Welcome, Guest. Please login or register.
    February 28, 2020, 12:27:29 PM

  • Login with username, password and session length

Sajid's dove

Tell everyone they can now find this site by typing this into their browser:

thalpal.com

Click to visit us on Facebook


If you have any problems registering or signing in, please send an email to: andythalpal@yahoo.com
Please do not send questions about thalassemia to this address.


Administrators
Andy
Danielle

Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55209 Posts in 5890 Topics by 6179 Members
Latest Member: charlie_k1081

Forum Tip: 
You can change your member name in your profile, under "Account Related Settings," so you don't have to re-register to change it.
« previous next »
Pages: 1 Go Down Print
Author Topic: National Institutes of Health (NIH) Recruiting Patients for Red Blood Cell Study  (Read 4839 times)
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8621


Will thal rule you or will you rule thal?


« on: February 24, 2006, 12:05:20 AM »

Thanks to Shirley for passing on this information.

National Institutes of Health (NIH) is recruiting patients for a study involving red blood cells.

"Summary:
This study will examine blood for factors that may cause or prevent diseases involving red blood cells. Red blood cells carry oxygen to body tissues. A better understanding of these cells may help lead to better treatment of diseases involving red blood cells.

Patients of all ages with red cell abnormalities in the following categories may be eligible for this study:

-Known red blood cell diseases, such as hemoglobinopathies

-Red blood cell diseases of unknown cause, such as hemolysis of unknown cause

-Red blood cell abnormalities with no overt clinical disease, such as hereditary persistence of fetal hemoglobin

This study may offer future generations hope of improved Red Blood Cell Disease treatment.  Participants will receive a physical exam, and standard medical tests that are related to red blood cells.  Participants will remain under the care of their primary health care provider during the study.  All study-related tests are provided at no cost.  Compensation provided.  Travel assistance may be provided.  The study takes place at the NIH Clinical Center in Bethesda, Maryland, just 9 miles north of Washington, DC. 

Below is a web link for our study."

http://clinicalstudies.info.nih.gov/detail/A_2005-DK-0085.html

Contact(s):
    Patient Recruitment and Public Liaison Office
    Building 61
    10 Cloister Court
    Bethesda, Maryland 20892-4754
    Toll Free: 1-800-411-1222
    TTY: 301-594-9774 (local),1-866-411-1010 (toll free)
    Fax: 301-480-9793

    Electronic Mail: prpl@mail.cc.nih.gov
 

Logged

Andy

All we are saying is give thals a chance.
Hallu
Active Member
**
Offline Offline

Posts: 70


« Reply #1 on: August 03, 2006, 11:50:40 AM »

Wanted to let you all know that I participated in this study. I don't have much to share at this point because I met the group just once and they talked about my history and took some blood for labs.
Also, I was told that they'll get back to me once they analyze my reports...will have more to post then.
I will recommend you to particate if you can as they need volunteers.

Andy and Shirley: Thanks for posting this information here...It really helps. I'm grateful to you guys

--Hallu
« Last Edit: August 03, 2006, 12:41:20 PM by Hallu » Logged
Hallu
Active Member
**
Offline Offline

Posts: 70


« Reply #2 on: October 24, 2006, 01:06:32 PM »

All,
I'm posting a flyer for this study and would ask you to participate if you can. These folks need volunteers.
Its a good way to get yourself evaluted too.

Thanks,
Hallu
Logged
Pages: 1 Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines Valid XHTML 1.0! Valid CSS!