- This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004) - We love you, Lisa.
May you Rest in Peace,
knowing that your legacy lives on,
right here, and through all of us.
You're forever in our hearts. - Forum Tip:
Put your birthdate in your profile, under "Forum Profile Information," and it will automatically come up on our calendar. - Forum Tip:
You can change your member name in your profile, under "Account Related Settings," so you don't have to re-register to change it. - Forum Tip:
You can now simply type thalpal.com into your browser and it will take you to this site. Tell your friends about this easy-to-remember name.
www.thalpal.com - A message for all parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
Tribute to Lisa Cammilleri (1970-2004)
Lisa touched many lives. How did she touch yours? Share your memories, stories, photos, poems, etc. |
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What is Thalassemia and How is it Treated? | |||
Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc. |
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better. |
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major. |
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia. |
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait. |
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc. |
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc. |
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT. The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions. Moderator: EugenioLaMesa |
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology. Moderator: WendyW |
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc. (Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board). |
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc. |
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements? |
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category. |
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia. |
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here |
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In Memory Of
Tributes to Those We've Known. Remember Your Loved Ones Here. |
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Documents
Download chat transcripts, newsletters, flyers, and other documents here. |
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Treatment Centers
Please tell us where you receive your treatment. |
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed. |
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Thalassemia Associations
Post info about your Local and National Thal Associations. |
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Blood Donor Registration Groups
List your blood donor sign-up group here |
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Older Chatter
Older Threads From General Chatter |
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Give a Gift to Thalassemia Patients and Friends
Give a gift to Thalassemia Patients and Friends using Paypal.com |
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Website Disclaimer Notice | |||
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