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hassan is on rodex

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maha:
Hi all
My son is on Rodex too. After reading posts by Micky I decided to try rodex too as dr mathur guaranteed it had no side effects. He has claimed to have cured 60 thal patients with his medicine.The last time i checked his hb level it was 7.1. Dr mathur said with his medicine at first the hb level would drop sometimes even down to 5 and then it would increase and stabilise around 7-10, and as the child grows it will gradually increase.He still has not been able to patent this medicicine. Some organisation is following the development of a few of his patients and in a couple of years he is quite certain to receive a patent. Maybe this is one reason Andy that he is unable to produce any documented evidence.I fervently believe my son too will benefit from this medicine. I will definitely post his progress anyway.
CIAO
maha

§ãJ¡Ð ساجد:
Hi Maha,

Hopefully your son is Intermedia (Remember the reports that you posted) and would benefit from this HbF inducing drug.

I'm just worried about the low Hb levels that Dr. Mathur is willing to maintain. Anyway, please be careful if his Hb keeps going low and stays too low. Don't hesitate to transfuse your child if you feel that the medicine is not working at anytime. It will save you lot of troubles of complications due to lack of blood.

Take care, Peace!

kabir_love:
hey
best of luck.. and please tell me that your child is major or intermidetae i cant remeber.

but is and as on major cases if dr. mathur is giving the hb inducer that also works? if not then y in my case it worked cauz my son is a major..


regs
micky

maha:
Hi Mickey,
Sorry, I couldn`t reply earlier. The past few days I have been in and out of hospital. Hassan is not doing very well. His hb had dropped to 4.6. He needed to transfuse but his wbc`s were exceptionally high at 44000. Two of the most equipped hospitals were unwilling to transfuse without a complete investigation. They also wanted to do a bone marrow aspiration test for which I was not willing. In the end I had to go back to the same hospital where Hassan was transfused earlier. The cbc was repeated and the WBC`S were at 23000 within the acceptable range. He was eventually given 120ml blood. The worrying point is that even after a transfusion his hb is at 6 which is still very low. By the way his post trans hb was checked in an another lab coz his doc said there was no point in checking hb after trans and asked us to come after 4 weeks for his next transfusion. Now to come back to your question I don`t know if Hassan is a major or an intermedia. I was hoping and praying he would behave more like an intermedia but since his hb has dropped so low he is probably a major. By the way Mickey we had talked to the Hyderabadi family whose son is taking dr mathur`s treatment. There son`s hb has dropped to 7.2 after stabilising at 8.8 for quite some time and are taking rodex again for a couple of months.Hope your son`s hb improves in leaps and bounds.
regards
maha

kabir_love:
hi maha.
 you are taking rodex aswell so did you talk to mathur for the tranfusion he strictly says no to the blood transfuion until unless the child is very lazy and reckless as if the new blood is introduce then the effect of rodex is finished and the cycle is finish as what i had seen the other cases of mathur to made the blood trans. so what can i say know as per my child i never made the blood change and i also didnt check the hb just i was seeing the condition of my son and his spleen and other they all were perfrect though i was sure that hb is down. but about 4 months then it stabiliz and didnt went down any furthur.  so you must consulf with mathur for what to do

regs
micky

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