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Is there any treatment to maintain normal height in Thal. Major

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Andy Battaglia:
I would like to add that in cases where growth has already been slowed by the complications of thal, that growth hormones are often used to stimulate growth. The best success rates occur when the growth hormone intervention takes place at the onset of puberty, rather than later. Early intervention is essential in hormone replacement treatment.

Zaini:
Hi,

I have a question here,though my daughter is too young for that right now,but still i would like to know this,specially from adult thel females,like smurfette or miaki or sydneygirl,that do thals start having periods just like normal females,or do we have to give them medicines?bcoz once i met a mother of 16 years old thal girl, and she told me that they had to do some harmone therapy for her periods to get started, is this what happens to everyone,or there are any exceptions?once a heamotologist told me here that once your child nears the age of 10,start monitoring their harmones,to keep a check on reproductive system and everything,and to make your kid hit puberty at the right time,i need a little help and guidance here,my daughter is only 6 and a half years right now,but it is good to be acknowledged.

Waiting for your replies,

ZAINI.

Smurfette:
Hello Zaini,

Sorry for the delay in replying..Your question you asked is one to be asked by your endocrinologist...It all depends on when your daughter started her desferal treatment and how long she has been on it for...

You still have to do the test to see how her hormones are doing..but some girls that I know do take some sort of hormone therapy...but your daughter is still young and if she is chelating as she is supposed to...I am sure that she wont have any problems..

All females vary too...So its better to ask the edocrine doctor..

Hope this helps..

Zaini:
Thanx Smurfette, :hugfriend

My daughter started desferal when she was 4 years old,and her transfusions were started when she was three years old and now she is 6 and half years old,but from last one and a half year she is also taking ferriprox(defriprone),her S.F last checked was 1327,i know it's high but i am working hard on it,so i hope and pray that there will  be no problems in future.

TAKE CARE,

ZAINI.

vic:
hi zaini,
how often does your daughter do desferal?
vic

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