Discussion Forums > Diet, Nutrition and Supplements
Vitamin and Mineral Supplementation in Thalassemia
Pratik:
--- Quote from: Andy on December 07, 2012, 06:28:23 AM ---Your current dose is fine for your weight.
--- End quote ---
Then roughly around what weight could I increase dose more by 400mg (calcium)?
-P.
chili:
Please someone help me!! I have thal minor and celiac disease. I have gone up to 30 years of age without iron supplements! When I got pregnant with my first, my doctor tole me to take 3 iron pulls a day 300mg. I did and continued to do so with my other two children. After my second child was born 2007. I started losing weight, major tummy troubles was vet sick and very thin. 2011 I was diagnosed with celiac disease. So basically for 7 years I have been on and off of iron supplements. I was told I had low iron, anemia etc. 2 weeks ago I started taking a new multi vitamin called CeliAct. I dropped the iron supp. As I was taking 1 300 mg daily. I never knew that thals were no supposed to take iron. I did what my doctor told me to do. What should I do, and what tests to I need to check to see if I indeed need iron.
Here is the link of the vitamin I am taking any advice would vibe greatly appreciated. This is completely stressing me out and consuming my every being!? I am scared now that I did damage with all that iron.
www. Celiact.com
Thanks
Pratik:
--- Quote from: chili on January 03, 2013, 07:32:51 PM ---Please someone help me!! I have thal minor and celiac disease. I have gone up to 30 years of age without iron supplements! When I got pregnant with my first, my doctor tole me to take 3 iron pulls a day 300mg. I did and continued to do so with my other two children. After my second child was born 2007. I started losing weight, major tummy troubles was vet sick and very thin. 2011 I was diagnosed with celiac disease. So basically for 7 years I have been on and off of iron supplements. I was told I had low iron, anemia etc. 2 weeks ago I started taking a new multi vitamin called CeliAct. I dropped the iron supp. As I was taking 1 300 mg daily. I never knew that thals were no supposed to take iron. I did what my doctor told me to do. What should I do, and what tests to I need to check to see if I indeed need iron.
Here is the link of the vitamin I am taking any advice would vibe greatly appreciated. This is completely stressing me out and consuming my every being!? I am scared now that I did damage with all that iron.
www. Celiact.com
Thanks
--- End quote ---
Hi Chili,
Thal Majors cannot take iron supplement as they already are iron overloaded but thal minors taking iron pills is just fine. Although I feel 300mg (if daily) is little or very high dosage.
Have you got your ferritin (the concentration or amount of iron present in blood stream) report done recently?
-P.
Narendra:
--- Quote from: chili on January 03, 2013, 07:32:51 PM ---Please someone help me!! I have thal minor and celiac disease. I have gone up to 30 years of age without iron supplements! When I got pregnant with my first, my doctor tole me to take 3 iron pulls a day 300mg. I did and continued to do so with my other two children. After my second child was born 2007. I started losing weight, major tummy troubles was vet sick and very thin. 2011 I was diagnosed with celiac disease. So basically for 7 years I have been on and off of iron supplements. I was told I had low iron, anemia etc. 2 weeks ago I started taking a new multi vitamin called CeliAct. I dropped the iron supp. As I was taking 1 300 mg daily. I never knew that thals were no supposed to take iron. I did what my doctor told me to do. What should I do, and what tests to I need to check to see if I indeed need iron.
Here is the link of the vitamin I am taking any advice would vibe greatly appreciated. This is completely stressing me out and consuming my every being!? I am scared now that I did damage with all that iron.
www. Celiact.com
Thanks
--- End quote ---
chili - Welcome to thalpal,
Iron would be needed if you are truly iron deficient. This can be found out by undergoing an iron panel testing. The Iron panel tests consists of serum ferritin, serum iron and total iron binding capacity.
Many doctor's who do not know about thalassemia and Iron unknowingly prescribe Iron which does not help if a person is NOT Iron deficient.
Andy Battaglia:
Narendra has advised you correctly about iron. I don't think anyone, thal or non-thal should take iron supplements unless an iron panel has been run and IDA has been diagnosed. Long term iron supplements can cause damage to organs as the iron builds up. Most patients will show an increase in Hb after one month on iron. If this does not happen, IDA cannot be assumed. Iron is also rough on the digestive system, so those with celiac should be very careful about what form of iron they take. Injections may be necessary when needed, so as not to disrupt the digestive system even further.
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