Discussion Forums > Diet, Nutrition and Supplements
Vitamin and Mineral Supplementation in Thalassemia
pgpawar2:
Hello Andy sir,
My son Sumit Pawar 9 years old from India under the treatment of Dr.Vijay Ramanan Pune since 2.6 years.He is Thallassemia Intermedia.Dr.Ramanan prescribed some medicines as follows.
1) Wheat grass powder(Globsure powder)
2) Riboria 500mg(Hydroxyurea)
3) Thalide 50mg(Thaladomide)
4) Loprin 75 mg
5)C.C2B Plus
6)C.Gluder
7)Tab. Calceome
He never required blood transfusion,his Hb remains between 10.5 - 11.5 in every month and overall health is good
My question is, there is any side effect above medicines for long time consuption on kidney and other organs in the body Please repply, Thank you,
Andy Battaglia:
All medicines have some side effects, but the lower doses used in this therapy have not shown any long term serious side effects in users. From the reports I have received about this therapy, I would say that any serious side effects are observed within the first couple months and if this therapy does not suit that patient, it is discontinued. Your child is long past this stage. Keep in mind that the transfusion and chelation method of treatment also has side effects, and the side effects of chelation drugs can even be dangerous to some patients, so one needs to weigh this against the side effects of the therapy.
pgpawar2:
Thank you very much sir, for your valuable suggestions
dahlsi:
Hi Andy,
Thanks so much for the information you provided about the list of Vitamin and Mineral Supplementation for Thalassemia patients! I was already taking some of these, but am now taking closer to the full list. It has made a big difference, finally I can now get through a hectic work day without feeling tired or lethargic as a result :)
I have also started to use organic Wheatgrass powder in a juice that I make for myself and drink daily, which is helpful as well.
PS - I am so grateful that this website exists! It's so good to have a community of Thal patients who are going through similar symptoms to me, where we can share knowledge and support one another :) Keep up the great work!
Cheers, Dalia
Andy Battaglia:
Dalia,
I am happy the recommendations are helping. It's tough to get doctors to pay attention to the additional nutritional needs caused by thalassemia, so much of my focus all along has been to help provide the missing information. much of it gathered from the experiences of people like yourself.
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