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Vitamin and Mineral Supplementation in Thalassemia

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restless923:

--- Quote from: Andy Battaglia on March 17, 2022, 10:32:54 PM ---restless 923,
I take a product that contains a zinc amino acid chelate complex, along with a copper amino acid chelate complex. It is very effective based on my tests over the past year. The one I use is made by Solaray. When taking copper or zinc, the other mineral should also be taken, so that neither one gets out of balance.
This is what I use. It can be found at various supplement sellers. https://solaray.com/products/zinc-copper

--- End quote ---

Thank you so much for your help.

Manjit:
Andy,

Thank you for reviewing. Do you know if there is any connection between Thal minor and chronic upper respiratory system infection/disease? I find that my airways are always congested and it seems to get better when I take liquid fish oil or vitamin C but the relief is temporary. Recently, I started taking creatine and I immediately noticed an improvement in my ability to breathe fully. However, the relief is again temporary. I have not yet visited an ENT specialist but want to know if there is a connection between Thal and upper respiratory infection/disease.

Thank you for all you do.

Andy Battaglia:
I have not heard of any specific connection between thal and respiratory issues. I would suggest being tested for asthma.

juvefreaks:
Hi, Andy
Thank you for accepting me into this blissful forum.

I'm from Indonesia and have a 2.5 years old daughter diagnosed with HBE/Beta Thal. I am not sure if my daughter is classified as major or intermedia because so many different perspectives from the doctor that I met.

I create a simple medical journey for my daughter to monitor her treatment, I want to know your opinion about this: https://docs.google.com/spreadsheets/d/1hLNI02pOQC7gzhOgfbniey8KUgJkuh5NqZEhFM7xoHo/edit?usp=sharing

So far, my daughter is very active, with no significant problems except her weight is stagnant. The doctor gave us the vitamin as follows:

Folic Acid : 2 x 1 mg (Generic)
Vit. E : 2 x 100 mg (150 IU) (Generic)
Vit. D3 : 1 x 800 IU

Also, I give her additional dietary for her meal such as:

Tea
Honey
Iron-free multivitamin and mineral
Fruit: Peer, Apple, Strawberry
Wheatgrass Powder : 2 x 1/2 teaspoon
Wheatgrass Juice : 2 x 2 tablespoon

The wheatgrass juice is homemade and self-planted.

I want to ask something:
1. I want to change the folic acid and vitamin E because there is a generic (non-branded) vitamin from the pharmacy as prescribed by a doctor. That is helpful?
2. What is the additional vitamin & supplement and the dosage that is suitable for my daughter at her age? Right now her weight is 9.5kg slightly lower than her age.

Thank you

Andy Battaglia:
L-methylfolate is preferred over folic acid, as it is processed better by the liver. It can be very effective. I take it daily to combat fatigue from my bad thyroid and it works well. It also keeps my Hb quite high. Only natural vitamin E should be used. it will be marked D-alpha tocopherol, not Dl-tocopherol. Dl is the synthetic form and is made from industrial waste products.
Keep giving your child good wholesome foods that are nutritious.
Her status is most likely intermedia.

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