Discussion Forums > Diet, Nutrition and Supplements
Vitamin and Mineral Supplementation in Thalassemia
Sharmin:
Thanks Andy,
This information is very helpful. It seems that regulating the immune system is very tricky - getting it to do what it should but not what it shouldn't do. I guess what we can hope for is - as our doctor says the antibody to burn out - either on its own or with treatment.
The other method, according to our doctor, that could resolve, would be a transplant - because everything is wiped out and repopulated in the process. I know that the marrow is ablated for gene therapy as well - but god only knows when that will be available. I hope things work themselves out for us in the meantime.
I will discuss all of this further with dr. vichinsky,
Sharmin
Teresa:
Hi Andy,
I have beta thal minor. I have been taking 500mg of Vit C for almost a year for my allergy and easy to get a cold. I have joint pains and I have been changing different mattress pads or mattress and it still doesn't help. Is it because I have overdosed 500mg C daily? Lately, I have been trying B complex and found out my asthmatic symptoms is gone. But B complex also hurts my stomach and intestine in the first hour. I change to B complex with yeast free. The pain is less but not completely. B complex calms and relaxes me.
I was taking daily on multivitamin with 800 folic acid, Vit C 500, calcium 600 + D 400, omega-3 1200, and whenever needed on B complex 60. I just cut Vit. C. Can you see what else I need to cut for beta thal minor and what to add as well? Many thanks!
Teresa
Sharmin:
Dear Teresa :hithere ,
Welcome to our site, please see the following post regarding thalassemia trait and supplementation. It is our latest discussion on vitamins.
http://www.thalassemiapatientsandfriends.com/index.php?topic=2164.0
A couple of vitamins brands are listed as good supplements for thal minor, also Andy has suggested a few others to take alongside the mutli. Please avoid iron when taking vitamins as thalassemics are prone to iron overload to their tendency to have increased iron absorption.
Best of luck and please feel free to post any other concerns you may have,
Sharmin
Teresa:
Hi Sharmin,
Thank you for the useful source! I cannot find the Swiss Natural Sources Time Released. For the Swiss Total One Antioxidant, the only thing I'm concern is the word 'anti-aging'. Will it be too much for a 42 years old woman? Thanks in advance!
Teresa.
Sharmin:
Hi Teresa,
I am glad that you found the thread helpful. That is a good question, the name of this multi vitamin has recently been changed from 'anti-aging' to 'antioxidant' probably to avoid this confusion. It is important to focus on are the ingredients of the vitamin - and we find the ingredients of this vitamin to be quite good for adult thal minors.
This particular vitamin contains alpha lipoic acid, lutein, zeaxanthin, lycopene, green tea, grape seed and omega-3 and some other important supplements along with the vitamins and minerals which most multi vitamins contain. Also, it is free of artificial preservatives, colour, wheat or yeast. I have used this vitamin personally and I feel great when using it. I began taking it at the age of 32.
The vitamin doses won't be too much for you. You may find that your urine is neon yellow after taking the supplement, this is from the extra vitamins that your body does not absorb so don't be concerned.
If you begin using them, please post your experience with the product. Also, Andy has posted some other supplements that thal minors should be taking along with a multi so be sure to view that as well.
take care,
Sharmin
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