Discussion Forums > Thalassemia Major

Thalassemia and developmental delays

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EMommy:
Hi All:
I am wondering if anyone has any information regarding the development of children with Thalassemia major.  Our daughter who was adopted is behind in her gross motor skills such as walking.  I guess I am wondering if her delays are due more to the Thalassemia or being in an orphanage for 9.5 months.  Is there a relationship between the lack of oxygen getting to the body and developing motor skills.  Is our daughter going to tire easily from exertion? 
She is getting transfused about every 3 weeks right now.  She is almost 18 months and has never wanted to crawl.  She walks, but is still very wobbly. 
Anyone have any ideas, advice for me?  I do not want to push her too much. 
We are going to try to get her a physical/occupational therapist to help her but I want to have good information to tell them. 
Thanks!

§ãJ¡Ð ساجد:
Hi,

Low hemoglobin levels can cause lethargy resulting in lack of interests in such motor skills. I myself was diagnosed as Thal. due to the same reason when my parents saw me taking no interest in walking and spend most of the time only sitting the baby walker or taking some steps and stopping for rest too quickly.

Sharmin:
Hi emommy,

your daughter is adorable.  Having thalassemia should not cause developmental delay in your child if she is properly transfused.  The delay may have been due to her early time in the orphanage.  I'm sure your love & attention will help her catch up very soon.  All the best.

Sharmin

Zaini:
Hi Rebecca,

I think you should check your daughter's calcium and vitamin D levels,if they are below normal,that could be the reason for her late or slow walking.Just to let you know, you are an amazing person :) ,i wish i could have adopted a child with thal major,but treatment here in our country for thalassemia is quiet expensive,anyways,may be there would be some day that i'd be able to adopt these little angels who deserve best care and love.

Take care,

ZAINI.

Canadian_Family:
Hi,

There is a fair bit of children who don't take interest in crawling or their motor skills development is delayed. Every child develops on its own pace but just don't push it. Since you daughter is transfused regularly, and already walking (doesn't matter wobbly) she is just fine.

For your information the penguin style walk can last upto 3 years. Its very normal, JUST BE PREPARED TO DEAL WITH LOTS OF BUMPS AND BRUISES FROM NOW ON :smiley :smiley

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