Discussion Forums > Thalassemia Major

regarding my daughter

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Andy Battaglia:
A Hb that has fallen as low as 4 cannot be considered intermedia. Maintaining an Hb below 7 during the first two years is not sign of intermedia and the sudden drop below 5 is very alarming. I feel the child should have been transfused much earlier as bone changes may have occurred due to insufficient blood causing bone marrow expansion. The child should be on regular transfusions and you have to face the reality of this or your child will suffer skeletal and developmental damage, with eventual damage to the glands and organs.

It is not common for me to be harsh so please take the words seriously. Your child will suffer damage to her health unless you put her on a regular transfusion program. Perhaps you may find some success with Dr Mathur but as long as her Hb is as low as it is, you should have her transfused regularly and as it has been said here, please strive for an Hb of at least 10 to prevent growth problems.

I know having a thal child is never easy to accept but as a parent, you must provide proper treatment, rather than deny that your child is a major. Please accept this and get your child the help she needs. Continued denial will only harm her development.

Canadian_Family:

--- Quote from: Andy on September 11, 2007, 04:31:21 PM ---
I know having a thal child is never easy to accept but as a parent, you must provide proper treatment, rather than deny that your child is a major. Please accept this and get your child the help she needs. Continued denial will only harm her development.

--- End quote ---

Well Said Andy and we completely agree.

Simran and Maha please take serious note of it.

maha:
Hi Canadian family
Thanks for your concern. I am definitely not in denial that my son`s a thal major. That is why I have involved a thal speciallist to monitor Hassan as I continue with Rodex. She said she would co-operate with us but if Hassan drops below 5 she will definitely transfuse him. Dr Mathur insists on no transfusions because that is how his medicine works. All I can say about Dr Mathur is he is definitely not a fraud because whatever be the political scenario in India the head of states do not endorse frauds. He has given us a copy of his magazine where leading politicians, governors and cheif ministers of various states have applauded on his dedication to find cures for various deseases and disorders. The concern however is on the growth and development of the child and that is the reason he gives supportive medicine for each symptom. In any case his treatment takes from 6 months to a year depending on individuals. Every treatment has its own risks be it bmt, gene therapy or Rodex.
Regards
MAHA

Life is Beautiful ~:
Hi

My daughter is a Thalassaemia Major. She is now five years old. She undergoes regular blood transfusions since the age of 8 months. Generally, so far she has grown as per normal standards. She is highly active and pretty smart. However, she can't be classified as well chelated as her iron counts are dismal. At this moment we are trying to concentrate on that end.

We are highly interested about Dr. Mathur's treatment or RODEX? Can any one update us regarding that? How to contact him? What are the charges etc.?

If someone could advise us on the possibility of getting any treatment based on other foirm of alternative medicine that could also be of great help.
Sincere regards to all the forum members. May god bless all of us.


We are based in Calcutta, India.




--- Quote from: maha on September 12, 2007, 08:09:34 AM ---Hi Canadian family
Thanks for your concern. I am definitely not in denial that my son`s a thal major. That is why I have involved a thal speciallist to monitor Hassan as I continue with Rodex. She said she would co-operate with us but if Hassan drops below 5 she will definitely transfuse him. Dr Mathur insists on no transfusions because that is how his medicine works. All I can say about Dr Mathur is he is definitely not a fraud because whatever be the political scenario in India the head of states do not endorse frauds. He has given us a copy of his magazine where leading politicians, governors and cheif ministers of various states have applauded on his dedication to find cures for various deseases and disorders. The concern however is on the growth and development of the child and that is the reason he gives supportive medicine for each symptom. In any case his treatment takes from 6 months to a year depending on individuals. Every treatment has its own risks be it bmt, gene therapy or Rodex.
Regards
MAHA

--- End quote ---

simran2007:
hi calcutta family
i have Dr. Mathur Phone no. U can contact him on phone he is residing in Gurgaon And u can take an appointment and address by call
Ph. No.:--098110076777

all the best and reply to ur further actiion and abt urs daughter
simran

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