Discussion Forums > Working Towards a Cure
I am about to decide
Sharmin:
Manal,
I know that you will do what is best for your adorable little boy. Remember that there is so much on the horizon for thalassemia - you should not feel rushed to make any decisions. I don't know if this treatment is valid or not - but make sure you have all of the facts you need before you make any decision. I wish you all the best in making these decisions.
Don't worry my friend, there will be a cure for our children soon.
Sharmin
kabir_love:
hi manal,
well though i dont know much about what is happeing.though my son is under rodex for now 9 months. and this is also from germany i hope the method must be quiet same its just that its being treatet by homeopath so its under suspecion always, well my some hb is 7.5 till now but what ever is it his growth is very normal and beside this no bt ever done and i m happy with this only.. apart he is a very happy child so i hope even this rodex buy we good time if not cure him but i hope till the time some one come up with 100% cure im really greatful to this doctor.
anyway i dont think that as your doct. said the hb will inrease in 1 month , as it will be 3 months atleast rest if you undergo the treatment then keep me updated aswell my email : hsimpex@rediffmail.com ill recheck with my doc. as they both are using almost same kind of method. and as per my doc. now its 2 year teratment to stablize the hb. well for rest just pray to god to get the best of all here....
Zaini:
Hey Manal,
try to calm down and relax, i know it's a big decision,i am also a mother of a thal kid,so i know how hopes go up when we find something like this,and how fear clenches our heart for the unknown, but as Kathy said you need to be focused,the link for the patients on that side is not working,so it would do a lot of good if you can get some info about patients through your relative,though i think an important link like that should not be inactive,
Take deep breaths and calm down ,we are all here to support you. :hugfriend :bighug
ZAINI.
Manal:
Sharmin. Kabir-love and Zaini ,thank you sooo much for your support :hugfriend :hugfriend
Manal
maha:
Hi Manal
When I talked to the thal speciallist about the alternative medicines Hassan was taking, she told us over the years she had heard a lot of such claims. Infact when she was in Germany for a seminar she had met patients claiming to have been cured from thal. While there she tried to contact the doc responsible but he was not willing to talk to her. She also said she had heard such claims from Bahrain as well. Now I wonder if she was talking about the same therapy .
regards
maha
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