Discussion Forums > Thalassemia Major

hi Iam new my younger daughter is thalessemic major

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Bostonian_04:
Rupali, our daughter is also getting monthly blood transfusion since she is 2 months old. Her doctor in Boston told us that we will not start chelation till she is 2 years old, even though she will probably have more than 20 transfusions. You should ask your daughter's Thal doctor when they will start her chelation. The chelation is to be started under a doctor's supervision, no matter which method of chelation you decide to use.
About your daughter with TM, she will grow up as normal as any other kid as long as you are dilligent with her treatment and provide her the education to grow up as strong & independent person. That's what we want to impart to our daughter. But first, we have to be strong and that's what me and my wife are trying to be.

opkaram:
Hi Rupali,

I am sorry to hear this news. We also had the same situation and trauma when our daughter was diagnosed as Thalassemia major and got her blood transfusion. Currently there has been lot of improvement and advancement in thalassmemia care that you really do not face too many problems. There is lots of information availble in forums like this and support groups which help us to take right care. When I was in india , I was associated with Thalassemic society of india . their website it www.thalassemicsindia.org. They have lots of good information and support for thalssemia care. I understand that it is a difficult situation but you need to have courage, with proper care and attention your kid would be all right. My daughter is now 3 years old and it growing normal in-fact ahead of her milestones.

Take care !

Om

Andy Battaglia:
Organization: Thalassemics India
Address: C-1/59 Safdarjung Development Area
New Delhi 110016
INDIA
Telephone: 11-661199 / 11-6845461
Fax: 11-6855721 / 11-6462970

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