Discussion Forums > Working Towards a Cure
Carao: Has Anyone Ever Tried This Product?
Andy Battaglia:
I want to remind everyone in Lloyd's trial that they need to keep records of the dosage used and the Hb levels before and after starting carao. Also, please make note of any changes in overall health that you see during the trial, and please, once you start, do follow through and don't skip giving it.
Zaini:
Hi,
I'll try to convince her to take three spoons a day,but the smell and the taste is a big problem,i tried mixing it in her milo chocolate milk,but she detected the taste and smell,i've recieved one bottle ,i hope i'll get others soon.it's been only 10-11 days she started carao,tomorrow is her transfusion,i don't think we'll see any change in her hb that early,will we?
Zaini.
nice friend:
Zaini,
try to give her Carao in "Candia flavoured milk " and choose the flovour " strawberry " i hope she will fail to find its ( carao syrup's ) smell .... ..but be aware to pr-added sugar in candia flavoured milk ...
Zaini:
Hi Umair,
Actually the smell and taste of carao is very very strong,so it's almost impossible not to detect it,unless you you develop a taste for it,like christine's daughter did,anyways zainab is taking it anyhow,after a bit of fussing,which is a part of being a kid :biggrin.I just hope she gets it's benefits.
She went for transfusion today and her pre transfusion hb was 9.4 .
Zaini.
Lloyd Standish:
Zaini: Pre-transfusion HGB at 9.4? Isn't that high enough to not require transfusion? In Costa Rica doctors won't transfuse anybody with higher than about 7.0 HGB. Is it normal for her to be at 9.4 before transfusion? What were zainab's previous pre-transfusion levels? And yes, Zaini, it IS possible to see changes in blood levels in only 10-11 days, although it usually takes longer than that.
How high do you need to see her HGB in order to decide not to transfuse? Um, I guess you can tell I think it is better to avoid transfusions if possible. In fact, one of my hopes for this carao trial is that it will allow some participants to stop getting transfusions.
Mudit and Al, have your shipments arrived yet??
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