Discussion Forums > Working Towards a Cure
Carao: Has Anyone Ever Tried This Product?
mudit:
Lloyd, my shipment is not arrived yet...not sure if I have given my phone details too while placing this order. Pls let me know if I can do anything to track my shipment.
regards..
mudit
nice friend:
Hi Sis :
its nice to hear that, her pre-transfusion Hb is good .. Good Job Sis, it's the result of your good care behind her maintained Hb on good levels :thumbsup ...
i hope & wish that, it will increase in upcoming days.... Best of Luck ..
Take Care
Umair
Lloyd Standish:
Mudit: there is no tracking information on these airmail shipments. Since tracking from Costa Rica is not computerized, we have found it to be too slow to be useful.
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Lloyd
§ãJ¡Ð ساجد:
Hi Lloyd,
Transfusion regimen vary from place to place. Like here at Jamila Sultana Foundation in Rawalpindi they try to keep the pre transf. HB above 10 all the time by giving less blood quicker to keep overall health good. In my case its after 10 days. They would transfuse even if my Hb is slightly above 11 instead of calling back again in a few days. The next transfusion however would be given later than usual. (eg 15 days instead of 10)
Zaini:
--- Quote from: sharmin on July 30, 2008, 10:48:15 PM ---Andy,
The goal is to have pretx hg levels between 9 and 10. They thought that below 9 was too low and can interfere with growth and cause the spleen and bone marrow to expand.
We did receive a lot of info - if there are any other questions you are welcome to ask while it is all fresh in my mind :biggrin
Sharmin
--- End quote ---
Hi Lloyd,
As you can see in Sharmin's post that Dr Vichinsky told her that pre transfusion hb should be in between 9 and 10,so it won 't effect bone marrow ,growth and spleen,so it's very normal for my daughter to get transfused at 9.4,even i remember that we even transfused her at 10 in the past.Although,since last few months her hb ahs hovered more between 9.2 and 9.6.
The duration between her transfusions is three weeks,even if this duration can increase and she can hold her hb for a little longer,like two or three months, it would be good.
How high do i need to see her hb for not transfusing? I guess if she can maintain her hb between 10-10.5,i won't transfuse her then.It's definitely better to avoid transfusions,less iron less problems,but if it effects her over all growth and health ,i would obviously opt for the transfusions.
I have increased her dose from two teaspoons to four teaspoons,divided in two doses,morning and evening,lets see what happens when the next transfusion comes.
Andy,
Am i right about the hb levels of 10-10.5 for not transfusing,do you think these levels are enough not to effect a child's health and growth?
Zaini.
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