Discussion Forums > Working Towards a Cure
Carao: Has Anyone Ever Tried This Product?
Lloyd Standish:
I think carao may be able to stabilize HGB above 9 in many thal intermediate patients. However, if blood transfusions are routinely given at HGB 9.5, or even 10+, this test might not allow us to know if/when blood levels have become stable and that bt is not necessary to maintain levels between 9 and 10.
Of course, I am not suggesting that anyone modify their treatment practices. I am only pointing out what may be the limitations of this informal study.
For thal minor, I am hoping to see HGB levels in the normal or near-normal range. Is there anyone in the carao study who is thal minor?
Glad your other bottles finally arrived, Zaini.
Sharmin:
The folks in Oakland would be proud of you Zaini :yes
Lloyd - I am a thal minor and I would be happy to participate in your trial.
Sharmin
Lloyd Standish:
Sharmin, this carao trial is closed, but if you can find 2 or more other thal minors who will participate (agreeing to post results here, and paying postage), I'll donate the carao for a thal minor trial!
Manal:
Hi Lloyd,
I am a thal minor and iron defiecent too, but as i told you i didn't start taking it yet cause i don't have all the bottles.
An Update on my son:
I did a CBC before taking carao, the Hb was 6.5 and the Reticulocyte Count was 12.6%. After finishing two bottles till now in around 45 days, his Hb is still 6.5 but the reticulocyte count is 3.5%. Though the hematologist can not see anything significant about this but i am sooo happy because to my knowledge this means that there is less pressure from the bone marrow on the bones. By the way we never had this reading even at the time when my son was taking the hydrroxyurea.
manal
Sharmin:
Anyone else?
Sharmin
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