Discussion Forums > Working Towards a Cure
Carao: Has Anyone Ever Tried This Product?
Zaini:
That's wonderful Manal :hugfriend My daughter is also taking carao,and her pre transfusion hb this time after 4 weeks was 9.5,which i believe isn't bad,right? I am supposed to keep her hb between 9 and 10,right?
Zaini.
Manal:
Yes Zaini, you are right and my general obsevation is that the max benefit from natural sources like carao don't come at one time but they accumulate over tie so i think the more she takes the more her pre transfusion hb will increase inshallah
manal
PixieDust:
Dear friends
This thread seems interesting & I landed here from a Google search. I'm a beta thal minor from Sri Lanka & my hb level won't pass 10, I'm a vegetarian & rarely eat fish. When I was a kid my parents used to force feed steak, liver etc and those days I had a long black hair. Ever since I became partly veg (fish + veg) around 15 years back my hair growth hindered & per day lot of hair falls out :( I went to so many dermatologists, many medications such as hair re-growth formulas nothing controlled my condition to a noticeable extent.
One Indian dermatologist at Apollo hospital pointed that amount of blood circulation to the scalp really matters when it comes to a healthy hair cycle, if blood circulation is minimal because in my case (low hb) it can shorten the life cycle of hair roots, and cause the condition called telogen effluvium (healthy hair strands falling out due to lack of nutrition) http://en.wikipedia.org/wiki/Telogen_effluvium
Although my energy level low as in any thal minor, I keep my mind steady & face day today work, but I'm not in a position to control my hair problem...
I would like to know if any of you (thal minors) had success with this natural supplement increasing your Hb levels at least to a minimum lower level...! If so I would like to give it a try.
Kind regards
Indunil
Lloyd Standish:
There's a confirmed thal minor in Costa Rica whose HGB is maintained in normal range by carao. Her name is Cinthya. Some information on her case, with published blood test results, is at http://www.hemobuilder.com/node/24. Cinthya will answer your questions if you email her at cinthyaaguero at yahoo.es (spam prevention: replace "at" with "@" and remove spaces).
I am by the way the producer of the carao fruit product who sponsored the test of it for thalassemia a couple of years ago through this forum. In hindsight, I was disappointed that so few thal minors tried it (only one, I think). In my opinion it is probably very effective to raise blood values in most cases of thal minor. For thal major, there have been reports of some benefit, but not dramatic. For all the information I have collected for carao used in cases of thalassemia, including some reports from this forum, go here: http://www.hemobuilder.com/node/34.
PixieDust:
Hey there,
Thank you so much for the info & testimonials, I would like to give it a try but at the moment I cannot afford it on my own. Shipping cost to Sri Lanka itself is too much to bear personally :(
Highly appreciate if a Sri Lankan pharmaceutical company, medical practice, Doctor could look into the feasibility of adopting it. I hope clinical trial in India would have gone successful with sicker cell patients. Same way I hope this medicine, herbal extraction could be successful when it comes to Beta thalassemia minors & intermediates.
Maybe some organisation from Sri Lanka will land here someday... & show their interest in carrying out a clinical trial as in India :rolleyes
Tx
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