Discussion Forums > Working Towards a Cure
Carao: Has Anyone Ever Tried This Product?
olivia mary:
Hi everyone,
I have been reading the post about carao fruit and I have decided to try it with Olivia.Is this something she can stay on long term, she is 4 yrs old now, how long can she take it for? For life?
Kathleen
Lloyd Standish:
Hello Kathleen,
Carao can certainly be taken long-term. It is a natural food with no known side effects. According to a young thal minor woman in Costa Rica, the effects are long lasting: use can be interrupted for 2-3 months at a time without losing benefits. She has interrupted use of carao because she sometimes runs out and she is, I think, shy about asking me for more (her supply is donated).
To participate in this informal study, Kathleen, please send me your email address. You should find a button to the left of this post for that.
I would very much like to accumulate more information on long term dosage for thalassemia and sickle cell anemia. After 2 or 3 months' use, I think the amount taken can be cut back to half or less of the recommended amount for acute anemia. That would allow a bottle to last about 5 weeks in the case of an adult, and 10 weeks in the case of a child under 6. (This is only a theory, based on what Dr. Sokoto and I have seen in a few thalassemia patients and many sickle cell patients.) For sickle cell anemia, the benefits (cessation of crisis and other symptoms) is supposed to last about 6 months after carao is no longer taken.
If anyone would like to help me send donated carao fruit to Sokoto State Specialist Hospital in Nigeria, I accept donations to help pay shipping at this page:http://webedit.voluntary-simplicity.org/donate.htm. Contact information for Dr. Attahiru Sokoto, pediatrician, can be found on that page.
maha:
I know that all of you that are going to start carao soon will keep track of your hb, But there is something else I would like you to check out. Most thals have problem with weight gain, mashallah my son has no such problem. His weight of 13kg is good for his height of 89cm. He is a little above the 50th percentile.He is almost 26 months old now. He was diagnosed exactly 13 months back and at that time his weight and height was 8.3 kg and 71cm respectively.
When you are giving a hundred and twenty different things to your child you cannot attribute the improvement to one thing. So members lets do a study to find if carao can improve weight and height in thal children.
maha
Lloyd Standish:
It's true that carao is for the most part is being added to a bunch of other things taken for thalassemia. That's part of the reason it is an "informal study." However, if most everyone can report benefits, I think it will show there is definitely a positive effect, and perhaps be motivation for more carefully-controlled studies.
Maha, did you notice an improvement in appetite and weight gain after your son started the carao almost 7 months ago? Or did you also introduce other therapies about the same time he started using the carao?
Does anyone know of a sickle cell support forum where a similar "informal study"of carao might be done?
maha:
Hi Lloyd
Hassan at 3 months weighed 7kg, he was quite a big baby then. When he was 9 months he weighed 8.1kg and like I said earlier at 13 months he was 8.3kg. He was not gaining weight inspite of having an ok appetite. I started carao in november and at that time he was 10.3kg. I had also started various therapies around the same time. For the past two months his appetite has been low( I have started something else ) but inspite of this he has been gaining weight.
maha
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