Discussion Forums > Thalassemia Major
telling people about thalassaemia
Canadian_Family:
You have touched a very sensitive issue, I think it all boils down to the society you live in or kind of people you interact with. If the people around you listen and understand and treat you no different than there is no harm in discussing Thal with them. On the other hand if you know the people around you will give you "the look", "sympathise" or "make comments" than you do not discuss Thal with them. On discovering my daughter's Thal we made some rules and abide by them religiuosly so far. The information on her thal is disclosed on a need to know basis only (e.g. Dentist, Doctor, School Teacher, or my boss); we do not discuss her thal with friends or our relatives (they have no concern to know and beside they can't do anything about it). We know at some point in time in future if my daughter decide to disclose her thal but until than we are not saying anything. We are raising my daughter as a normal child, she is treated no different than her brother and we are giving her confidence to face the world herself.
§ãJ¡Ð ساجد:
:exactly
No two people are alike. Similarly each group has it's own perception. It is O.K to discuss it with doctors and teachers as they can understand it to some extent. However, if a common person that you are dealing with in the daily life has no concern about it then you can leave them out in the beginning then gradually introduce it to them as if you are talking about someone else before finally revealing to them when they fully understand it that you were talking about your own self or your loved one. For example, to your colleagues and co workers etc.
It's not that easy, but you have to figure it out how a person will behave and are they worth telling unnecessary details.
mrtariqkhan:
I will have to agree with sajid here.. it is really not necessary to tell it to everyone. but me being a father and a greedy one , wants to get as many prayers for my daughter as possible ( so i tell it to my friends and anyone i know who would be kind enough to remember her in their prayers) ... just helps me to know that someone is praying for her besides me and my wife- otherwise i keep it to myself.
Ambika:
Hi Eesha
I think one should not hide(mainly the medical probem if any) anything if it has been asked specially . And one should not think that what the other person will think about yourself this guy or gal has this problem If they think like this than according to me thay are not the true Soul by heart and they are not medically fit by their mind . instead of showing sympathy towards people like us they have to praise us that still we are living are live in full without any complaint to any one .
so don't worry what other think always think that we are the Chosen one from god side and very close to him.
with thanks and regards
Rupali
EMommy:
Mrtariqkhan:
I just have to say that your little girl is SO beautiful!
Everyone, thank you so much for offering your opinions.
Our children are such precious gifts.
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