Discussion Forums > Working Towards a Cure
situation changes for me...
kabir_love:
thankx sajid.
well wht you said , dr. geeta shroff said same only as she said like blood group should be matched and its same she said she has much of the stemp cell in her lab from many donors. rest as she didnt explain much as she said she need all reports before dicussing furthur so we will meet her on monday i think after getting all reports.
well im not taking her treatment like that only. i will see some of her work on other patients first and report then ill decide. also may be once we show her reports then we will do the matching.
but still is there any side effect after matching?? as per her statment if body adapts them then its good otherwise they would simply be a normal waist and flush away.
rest too much confused myself ...
regs
micky
kabir_love:
please suggest.. like after HLA MATCHING for stemp cells. then should i undergo this geeta sheroff treatment. giving stemp cell daily by injection to my son intially phase1 for 3 months to see the effect.. if ok then phase 2 and phase3 for 3 months each... is there side effects and safe
Zaini:
I haven't ever heard of STEM CELL THERAPY,i know what is STEM CELL TRANSPLANT,but i think it's done after giving chemo first to the patient and then matched donor's stem cells are entered into the body so they start making new and non defective RBCS. and as far as i know that's a complicated procedure also including the risk of GVHD as in BMT.So i am not sure if this therapy is genuine.
ZAINI.
kabir_love:
hey every1,
my son had a fever and we really suffer a lot when this does as it really kills the growth of my son as his hb is also not much. well now after 2 days finally fever is gone. but now he is little week, little spleen was enlarged but now seems ok. dr mathur has changed the medican. rodex and give us the new rodex now to start the course
its really long time dr. said thing will be ok in 1 yr but now it seems it will go for another year but all this time atleast other things were stable hb is 7.0 for all this time , i had done all the test of my son and reports were not good. i mean hbf is same as before 89.9% till today. rest lever and other blood reports were ok. wbc count ok, rbc little less then normal should be.
but anyway we will do the test again after 15 days from another lab. to reconfirm this all.
and rest all i hope is good.
micky
kabir_love:
bad news. my son had fever and we tried to avoid them so we gave me crocin medican from day 1 of fever and in 3 fever though he was fine but doctor said that fever remains inside and thus gave too much weakness to my son and he cant walk also so we checked his hb and is was 5.9, we were really soo worred and nothing we could think of. but as this happened before also last year but my son recoverd in 7 days to normal that time we didnt checked the hb. so this time we are watching very closely to him as dr. mathur said he will definately recover in 7 days otherwise we can take blood transfusion. im soo worried i never wanted BT ever for my child and look for alternative way. now im going to hosiptal for HLA typing to match my son if with any one in my family as i really will go for BMT then.
im so depressed.
micky
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