Discussion Forums > Working Towards a Cure

situation changes for me...

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Andy Battaglia:
I'd like to add that one time or occassional transfusions won't create dependency and are sometimes needed to maintain health during illness. Do not hesitate to take a one time transfusion if it is needed.

Zaini:
 :agree With Canadian Family and Andy.

ZAINI.

mudit:
Hey Micky,

We don’t want you to be depressed or loose any hope.
You are a source of inspiration for lot of us, we always look forward to your ever encouraging posts suggesting new treatment or advice.

I expect you would stay calm and take correct decision for your kid, I am not an expert but from what I have read and experienced so far is do not keep him at a low Hb < 7 for very long time.

You can try wheatgrass therapy; this may help as it has in most of the cases and esp. with kids.

I am sure with a never tiring dad like you, your kid has nothing to fear about, your son will recover soon, my family prayers are with you and your lovely kid.

Cheers,
Mudit

kabir_love:
thanx .. thanx  a looottt all of your for your support. i think that typing your replies you really prayed for me. and guess what.. my son had recovred.. he is really very much prefrect in last three days i saw 25% imporvment every day. and today really god helps he is fine..

we will test hb on suday and hope its recoverd.. but now i m soo much scared im doing the aftermath. and getting done his hla typing and checking the match for him  we hope we find is matched if gods really want to help us. i must have this done so that in future something like this happen i ll do the  BLOOD TRANSFUSION that day and next day go for the BMT.

hope the need dosnt arises.

thanks a ton for all of you.
micky

kabir_love:
finally what we not wanted is coming up.

we went to check our son to dr. thal. specialist. she check my son and suggested us for blood transfuse. his spleen is enlarge about 3-4cms. and liver also little bit  .. she said if we avoid this then later for future we dont have much chancnes for  stem cell or bmt. even if we have matching donor.  now just 2 days we have to decide what to do. well  i had done booking for blood transfuion and im giving my blood to my son. dr. mathur donsnt want us to do the blood transfusion and is annoyed by us, i m soo much confuse what we have to do. god knows.. 

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