Discussion Forums > Working Towards a Cure

situation changes for me...

<< < (9/11) > >>

Canadian_Family:
Hi Micky,

I think 250ml is excessive, my daughter is 16.5kg and she gets 236ml every four to five weeks. I agree with maha that 150ml should be repeated after 3-4 weeks instead of 250ml at once. There has to be a regular blood pressure and pulse check up every hour during the blood transfusion to monitor the heart activity.

Where did you take your son for transfusion, if it was regular hospital set up and not a thal specialist clinic than the doctors may not know enough about the thal blood transfusion regimen.

I don't think the enlarged spleen and liver will come back to normal size in 4-5 months, it takes years and in some cases you have to wait for your son to grow enough such that the size is okay for him. When my daughter was first diagnosed as thal major at the age of 6 months, her spleen was already enlarged 1cm, we were advised by the doctors then that we have to wait until she grows. However, if your doctors are telling you 4-5 months than stay tuned for that.

I think you are on right track, please continue to see specialised thalassemia doctor and keep us posted.

Thanks.

Andy Battaglia:
Micky,

Because your son's Hb was already so low, he may need another transfusion in three weeks. It might take a couple transfusions to see what Hb level he can maintain on his own. If it continues to drop between transfusions, he will most likely need to stay on regular transfusions. For now, monitor his behavior and observe if there is a significant change in his energy level, his color, and his overall health. If these all improve, you may decide that transfusion is the best for him. I would also suggest starting him on some form of wheatgrass, along with IP6. Both are safe to take at all times.

Of course, we are all here to help guide you through these times.

Sharmin:
All the best Micky,
We hope that your son's health improves quickly.  We are all here for you.  Hopefully your son will improve after a few transfusions and will be able to maintain his hg on his own. We're all here to support you. 

Sharmin

§ãJ¡Ð ساجد:
Micky,
We are praying for your son.

:pray

kabir_love:
hi every1,
doctor suggested for 200ml of blood , but as nurse wasnt paying much attention also we were also not that alreat cauz my son was cryin a lot so by time we stop bt  it was about 250ml given , we did called doctro for this and she said it ok and give more of liquids to my son.

also after bt  today and yesteardy my son stomach is out and little hard we called doctor she said it happen after bt for 2-3 days.

ip6 i want to start to maitain iron from starting only.  so how much dose should i give to my son? as its one blood trasfuion is done yet?

please suggest.

Navigation

[0] Message Index

[#] Next page

[*] Previous page