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situation changes for me...

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kabir_love:
now its 1 week after 1st blood transfusion. well i had never seen my kid so enerjectic and happy playing around the house im happy but the fever of bt always hinders as in time the iron level will be next problem.

§ãJ¡Ð ساجد:
Hi Micky,

See, this is the reason we were insisting on transfusion.

With better Hb levels his quality of life will improve and you will see improved growth as well.

Just comply to the proper treatment and you will have a healthy, happy strong child.

Best wishes for the future.

Zaini:
I am very happy for your son Micky,blood transfusions will help him grow normally and strongly,and he'll lead a fairly normal life.I ron over load is definitely a problem but fortunately we are in age og advanced chelators,main point is being compliant.

ZAIN I.

poo gill:
Hello Kabir
Please talk to your Doctor about hydro oxy urea It is a drug many of us are using with positive results. Also do give him fresh wheat grass juice. AS he is 3  dont worry . Just monitor his hb. Please keep it ABOVE 7.

For my son we hv given first tran when he was 3. After that wheever his hb fell to 6 we had to give him trans. He has 4 transfusion so far,  he is 8 years  now. We are continuing  on hydro oxy urea and giving recormon.

Thanks

Puja

B Thal Girl:
Hi Mickey,
This is a bit of a sensitive topic for me. Normally my HB levels are maintained above 10 prior to my transfsuions which was okay as my energy levels remained stable. I have seen though as soon as it drops under that now, i feel tired and cranky....I even drop off to sleep in places I would not normally. I know that you are trying to do the best for your son and he may not understand much now but he would have  a much happier time once his levels are higher. Of course he would cry for the transfusions part...I did too...actually he is much luckier than me as i started at 5 months of age and am told that I really gave the adults a hrad time-pulling at the line etc...but I am MUCH happier for it now, being able to live with fewer complications....please consider everything everyone is telling you....WE LIVE IT!

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