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situation changes for me...

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Zaini:
Well said B Thal Girl  :thumbs

ZAINI.

kabir_love:
thanx all
my son is being test for hydroxuera.. result will come to us in 1 week. i hope if its goods for my son then we will start that immedeatly as i have very less knowledge for hydroxurea till now, im waiting for the test then i ll do research on thi

also i have start my son phytic acid 500 mg  daily.. in the morining after this 1st blood trafusion only. i hope its ok for me to start at this time or do i have to wait.???

regs
micky

B Thal Girl:
Hi Micky,
I guess that I must say that I dont envy you at all for I am reminded from time to time that the parents have more heartache than the kids especially when the children are young. I know that I might be sounding heartless as well but you will get used to it....we all had to. I think that you will also be amazed to see how easy your child adjust to it once he senses that you are also okay.
My parents spoilt me badly when i was small and always took a new toy along for each transfusion...was expensive but it made me forget what I was actually going through.

I know that there are other inducers which would also support us and help us to have to be transfused less and less but i am sure that you want to see your son exceling in school and sports etc. Look at how happy Zaini was when Zainab did well!!!You have to do what is right first. Even if the inducers work, the cbc's will show his levels and determine exactly how much blood he needs.

Please understand, I know how it feels to have a lower than normal hb and its not something I enjoy at ALL! Give him a fair chance, remember we understand ...we all live it. I know for sure that my mother and father kept praying for a miracle and also wanted to try everything on the market just to get me better. They also went to Italy three times just to beg Dr Lucarelli to consider transplanting with an unrelated donor...I am happy to say that they are much better now... :rotfl

So please he needs to be healthy now or his bone structure will also change  .....

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