Discussion Forums > Thalassemia Major
I feel i have reached the end of my road.....
§ãJ¡Ð ساجد:
--- Quote from: Danielle on January 23, 2008, 10:02:40 PM ---...I keep using my Desferal, and the numbers keep rising. It's so frustrating. When I went to get blood yesterday, I was actually excited to find out my ferritin level, thinking that I was doing really well with my medicine, and that the number would be lower. Well, to my surprise, it was higher ... a LOT higher. Now, I know that some experts say that the level in the blood sometimes increases before it falls, because it's pulling from the organs,....
--- End quote ---
Hi,
I've been facing the same issue and guess what? My doctor says the same that the Iron is now moving out from the tissues into the blood stream which is causing the elevated S.F result and it is nothing to worry about. :huh ??? :dunno
F.Y.I My S.F has risen from Higher 7000's to Lower 9000's :quiver :wah
Canadian_Family:
What !!!!!! Sajid are you telling us your ferritin is in 9000 range. I can't believe what I read. Pardon my ignorance I never knew your numbers. I expect from an experienced member to have much controlled levels of ferritin. I am in shock.
Danielle:
--- Quote from: §ãJ¡Ð ساجد on January 24, 2008, 02:48:36 PM ---Hi,
I've been facing the same issue and guess what? My doctor says the same that the Iron is now moving out from the tissues into the blood stream which is causing the elevated S.F result and it is nothing to worry about. :huh ??? :dunno
F.Y.I My S.F has risen from Higher 7000's to Lower 9000's :quiver :wah
--- End quote ---
Sajid, :hugfriend
What iron chelator do you use and how often? I'm very worried about your numbers, Buddy. Has your doctor recommended anything different? ???
My doctor wants me back on the Exjade along with the Desferal, so that's what I'm doing. I'll see how that goes. I just feel like whenever I get my numbers down, they go right back up again, because of all the blood I receive. :dunno
Manal:
Sajid, please do take care. I know you are much more expierenced in chelation so please do something :-\
Ambareen, when i went to one of the medical centers to give my son his treatment, i saw many people there who take ozone sessions to help them with virus C. Today i asked the doctor how ozone helps and he said that:
1- it increases the body immunity by acting against free radicales
2- helps the body to excret its own interferon to fight the virus. The natural body interferone is suitable for all versions of Virus C rather than the interferone medicine which is only suitable for version 4 of virus C
3- Virus C has something called ''motlia'' by which it can cling to the liver cells, get attached to them and then excret its RNA in the liver cells causing is replication and therefore an increase in the quantity of the virus causing cibrosis. So what the ozone does is that it weakens or does not enable this motlia to function and therefore the virus does not get attached to the liver cells. So the virus becomes free and acts as a dorment virus. So the ozone does not get rid of virus C, but help in making it dorment by not enabling it to replicate, resulting in lower quantities.
The doctor told me that ozone is not a treatment, but it is an aiding treatment. Patients don't stop taking their liver medicines but they stop taking the interferone.
I talked to a couple of patients in the center and they said that after excessive course of ozone, there quantities had significantly decreased
Ozone is taken through the blood. About 100 ml of blood is withdrawn then the blood is mixed with the ozone gas with calculated concentration then the blood is transfused back to the body.
I just came to know this about virus C, and i hope that this could be of any help to you
Take care
Manal
§ãJ¡Ð ساجد:
Hi everyone,
Thanks for all your concerns :grouphug
Well, my doctor is not worried much and is telling me not to also since the previous test was taken when I had joined J.S.F and was taking 2g Desferal only once a week or two. While the newer test is taken after I have been regular on 2g Desferal (6X a week; well there had been some supplies issues for about a month or so but definitely I have been taking more Desferal compared to before joining JSF). So, my doctor's theory is that the Iron is now mobilised from the organs to blood stream from where it will go down once all the stored iron is evacuated from the organ tissues.
Let's see what happens in the upcoming months :grin
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