Discussion Forums > Thalassemia Major

I feel i have reached the end of my road.....

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Hope:
Sajid,

I think you should talk to your Hemo for more intensive chelation therapy for you. I am not a doctor but a mother with a Thal Major child and after reading available resources on the internet, I truely feel you need much more intense chelation than what you are using now.

§ãJ¡Ð ساجد:
Hi Hope!

Thanks for your kind words. I don't think there is anything else that can be done more extensively than what I am getting. After all, I am the only member that takes out the most of the Desferal supply than anyone else at JSF :biggrin. I can't start Kelfer due to low blood counts and I'm allergic to Desferal via I.V

Asurna(Generic Exjade) was a ray of hope but it seems to be more of a gamble than hope.

In the end it all adds up to my health and how am I feeling; and I feel like a million bucks :grin as of now I don't feel sick or anything wrong. So, everything is "Just fine" and I hope that the next S.F readings will be much better, provided I get continuous supply of Desferal.

Thanks again everyone for your concerns. :grouphug

Hope:
Sajid,
I hope your next SF reading comes out much lower.

Eponine:

--- Quote from: Ambareen on January 31, 2008, 03:21:40 PM ---
 This is the first time that im reading about combining EXJADE and desrafal together, coz in our centre its said to be dangerous to do that...!!!

--- End quote ---

Hi Ambareen

Many studies are still ongoing regarding the combination therapy of Exjade and Desferal. Some think that there is not much use of it becuase both Exjade and Desferal gets rid of Iron in the liver rather than the heart. So its like taking two different types of medication for the same illness.

Miaki:
Hi once again,

I have also not heard of studies with Exjade and Desferal as Epomine mentioned that yes they both work the same organ (liver)

They should, if they have not started already a study of Exjade and L1, Exjade for the liver and L1 for the heart. Now wouldnt that be wonderful  :biggrin

Miaki

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