Discussion Forums > Thalassemia Major
I feel i have reached the end of my road.....
Danielle:
I thought they found that Exjade removed iron from the heart? ???
Nice to see you around, Miaki. :hugfriend
B Thal Girl:
No from all articles and papers submitted up to today, the ONLY chelator which has been proven to remove iron from the heart is L1 (deferiprone)
Danielle:
I'm on my laptop while getting blood right now, and since I have been extremely bored out of my mind, I thought I'd read a little more about it, and I found a lot of literature that suggests that Exjade does remove iron from the heart. :)
Here's one of the articles...
http://www.drugs.com/clinical_trials/once-daily-exjade-shown-remove-toxic-iron-heart-liver-according-data-presented-ash-3005.html
And here's a quote taken from that link:
--- Quote ---At a dose of 30 mg/kg, Exjade lowered both heart and liver iron levels in most patients," said Dr Farrukh Shah, Consultant Haematologist, The Whittington Hospital NHS Trust. "These data add to the growing body of evidence that Exjade successfully removes iron from the heart.
--- End quote ---
Zaini:
L1 and Exjade !!!!
It would be thunderful :biggrin no more needles.
ZAINI.
maryo0m:
Hi :wavey
I just wanted to say that no matter what you should never give up I know its hard but you have to think positive and trust me that will change you and the way you feel :wink
Its great to hear that you took classes Im so proud, But Plz re think about going to do a bone marrow transplant because at your stage it might be risky with so weak bones.
I'll tell you somthing plz plz pllllllllz dont give up I bet ur a strong fighter :kiss :getwell
wishing u the best
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