Discussion Forums > Thalassemia Major

I feel i have reached the end of my road.....

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Andy Battaglia:
Ferriscan is actually based in Australia and is readily available but use on young children is limited because they have to lie still for awhile. It really depends on the child. Dr Taher is a world renown thalassemia specialist and has a very good reputation.

I do agree that Aysam should have 24/7 desferal to clean out his liver. It is hard to say if the high liver readings are solely due to Exjade or if the high liver iron is a factor. But right now, getting the iron down should be a priority.

Manal:
I too agree that Dr. Taher should see him as soon as possible. Mariam did you rule out any other disorder that can aid in this iron overload. ?

manal

Sharmin:
Mariam,

I hope that Aysam's iron levels decrease very soon.  I agree that under the supervision of a good doctor exjade/desferal combination can work wonders.  I hope that the docs have his levels under control very soon. 

Sharmin

aysam:
we have ruled out every other illness nothing
its just his body and exjade cant fight and get rid of the iron like all others
he is a dificult case as they say
thankyou all for all ur support i am going to ali taher 17 sep ill be there and i will keep u posted
yes ali taher is adult but colegge dr suzzana kusa is there so same thing i suppose
its really scarey
i hope all gose welll
im afraid its too late for him.
he looks sick dark couler and just not like him active

Sharmin:
Mariam,

He is young and with the right treatment he will recover.  My prayers and best wishes are with you.  Take good care,

Sharmin

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