Discussion Forums > Thalassemia Major
I feel i have reached the end of my road.....
Zaini:
Mariam,
I think you should discontinue exjade for a while,my daughter's SGPT reached 231 and her doctor has already discontinued her exjade,we'll wait for a week,repeat the test and then we'll see what are the levels,700 is too much and Aysam is so young,can't you change your doctor while you are in Australia? One of our members Smurfette is also in Australia and she is managing herself very well,you can PM her and ask her if she can guide you to a better doctor.
Good luck,
Zaini.
mohamed:
hi,
i think he had to:
a) visit Dr Taher
b) stop exjade
c) go on IV desferal
d) consider causes of this acute hepatitis due to infections: Hepatitis A(from food) and B virus(from contaminated blood)
e) what about fever, anorexia , malaise and appetitie?
f) what about differential complete blood count? and retics?
g)what about bilirubin details (direct and indirect)?
h) what about LDH?
i) finally what about CT scan?
thank you
Mohamed
aysam:
.o.m.g mohamad stop u want some more shocking news u will never belive what happen my hussbasnd called and told the doctor
we are not going through the liver biopsy
we are takeing our son to lebaonon w
she wasnt happen at all u know what she said
she says i have to put aysams exjade up from 500 to 625 ml
my hussband said are u ok u put it up 2 months ago
shows u the hematoligist really knows what she si doing she said no its got 500
on my papper work hello u wrote the script for us doctor mmm?
then she said oh now i know why his liver test are redaing very high
help me man whats going on is this like a conspiricy or is my son a guine pig
aysam:
mohamad we asked to considir the ct scan intead of liver biopsy she said his to young and she advise to go to lebaonon she said they hae bad blood banks there walla
thsi si what the dioctor told me
aysam:
sorry mis type she advises NOT TO GO TO LEBANON she said the have bad blood bank
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