Discussion Forums > Thalassemia Major

Ferritin level gone up

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Andy Battaglia:
To those parents preparing to chelate their children for the first time, please look through the threads in the Iron Chelation Corner, and read the relevant postings. http://www.thalassemiapatientsandfriends.com/index.php?board=5.0

You should prepare yourself for both the usage of the chelators and also for all the emotional and psychological issues that can be involved, especially if desferal is used. Desferal involves inserting a needle under the skin for 12 hours or more at a time, 5-6 nights per week. This can be very hard for young children to accept and very difficult for parents to go through also. Reading these previous posts will make you aware of the problems and also the very many excellent solutions that have been offered by our members, who have kindly shared their experiences.

I think some very important advice to all of you is to be prepared so you know exactly what to expect once chelation begins. Talk to your doctors about what choice of chelators you have, but very few doctors will have the wealth of information found on this site concerning the actual use of chelators, so please pay much attention to what your fellow members have posted.

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