Discussion Forums > Working Towards a Cure
Research Priorities for Thalassemia
love and prayers:
"Patient recruitment and enrollment in clinical trials is a major challenge. Among people who suffer from severe chronic illness, only 6 percent participate in clinical trials. Almost 50 percent of trial delays result from patient enrollment problems and 86 percent of all U.S. clinical studies fail to recruit the required number of subjects on time. Industry wide there is a 20-30 percent patient dropout rate in Phase II/III studies."
http://www.nhlbi.nih.gov/meetings/workshops/thal_workshop.htm
Parin:
Dear All,
Any research or cure coming in near future i mean in 1-2 year.....I read lot many things but no one talked about the time.....any one have any thoughts?
DrRajpal:
--- Quote from: Andy on July 09, 2006, 07:34:46 AM ---I would like to remind all members to vote in this poll. Many doctors and researchers visit our site. Let them know what you think are the top priorities in thalassemia research.
--- End quote ---
ohhh
sir we are 5033 members here,
but participated in it only 127.
sir plz make any system that such polls should come on priority on every visit.
i could see it today , i feel nervous , i am here since long time but participating in it so late.
sir what i know till now,
5033 no. for any research will be one of rare for data collection.
we all should participate in it.
dear friends Dr Andy is a person who is here only for selfless service, we all should respond on his every action.
DrRajpal:
--- Quote from: cherieann on June 23, 2008, 09:43:17 AM ---That was hard to vote.
All are a priority to us in one form or another.
Quality of life would sum up what we want... don't you think?
--- End quote ---
Thalassaemia is a lifestyle not a burden.
best quotation i have heard till now,
mem can i use it in my campaigns ,
Qality of life is big concern for thals ,
as all of us know - it would be best if gene therapy gets success , but what till then?
we can work for-
reducing iron overload,
reducing amount of blood getting transfuse,
reducing Endocrine related disturbances,
reducing osteoporosis,
retardation of ageing,
reducing secondary infections,
protecting liver , spleen, heart , kidney , lungs, ears, vision, joints etc.
increasing time between two consecutive blood transfusions.
we all can gets these by simply Yoga , Ayurveda , and Naturopathy.
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