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Events happening for Thalassaemia Day

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Miaki:
Hello Sammyjoe,

The Thalassaemia Society of Victoria offers free education presentations to all secondary schools within Victoria Australia. They have a community educator that goes out to schools that specifically talks to Yr 10 to Yr 12 students (students between the ages of 15 and 17) about what thalassaemia is , carrier status and the outcomes of carrier couples. They also talk about becoming blood donors, as thalassaemia major patietns use a high quantity of blood stores. its nice if u can raise the awareness of thalassaemia and at the same time raise the awareness of the importance of becoming blood donors.

These presentations are all year round, so they are not specifically set for Int Thal Day May 8th.

Miaki

Angel123:
Hi Miaki,
thank you for the clarification. I have been trying to do research on possible events with the hope that most of the members might be spurred towards instigating something for the day in particular in their own country/ area. From the links and threads I have noticed that we have members internationally on this forum on a daily basis. Being able to support and also help each other can do a lot for a cause such as this, dont you agree?

I feel that being out there can make a world of difference to everyone. Do you know that a lot of people are still not aware of the condition, let alone its treatment. Personally I have not suffered or endured what the actual patients feel and most of my knowledge comes from my friend who is a patient in my class but I do feel that it is important to stand out and make others aware of Thalassaemia and its international day.

This is why I was hoping to get activities planned for this years event listed so everyone would have known what is happening on that day and even spread the word around in their own country. this way people would understand that its not just 10 patients in macedonia, or 40 in New york but over 250,000 patients internationally!

I know that I am rambling but I am so worked up about this as well.
thansk for listening
Sammy

Miaki:
Hi Sammyjoe

Good to hear from you and I am all for your way of thinking, we need more and more people like you.

Where are abouts are you located? Would love to liase with you re: promoting thalassaemia

Your friend is very blessed to have such a wonderful friend like you.

Keep up the good work.

Miaki

Angel123:
Hi Miaki,

Thank you for your nice words.

I live in Orlando now, just having moved from New York. I really do want to get people to understand and appreciate some of the other problems existing in this world. I I continue to pray that a remedy or cure will come soon.

When I listen and read to some of the problems faced by most patients I want to reach out and shake the powers that govern into listening as well.

We do need to get more attention so that something is done. Everyone I have spoken to , since finding out about Thalassemia, seems to think that it only affects a few people so its no bigee.

Nur:
I'tl Thalassaemia Day will be held this year in May in Kuala Lumpur Malayisa. I don't know the details yet but it's going to be a 4 days event.

Will update when i got the details.

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