Discussion Forums > Working Towards a Cure
HemaQuest Announces Initiation of Phase I Clinical Trial of HQK-1001
Dori:
Hi,
I dont know why he never has discussed that. I think because my pretty rare disease. On the other side I am the one who aren't jumping for this medicine. Nah, I have discussed this one with someone. I dunno, but I think I read something about kidney problems? I also want to take everything step for step. My first target in life is the ferritin and from that point I will be able to live my life completely. I am afraid that some won't agree with me, but you can always try to convince me :wink
Dore
Manal:
Dore, in trying to convience you :rotfl
--- Quote --- I read something about kidney problems?
--- End quote ---
When you are on HB inducers kidney and kiver functions are monitered every month until you are sure they are not affected,them you do it twice a year. Actually it is not a must that you get side effects concerning the kidneys, but even if this happenes, once you stop the inducers eerything is back to normal
--- Quote --- My first target in life is the ferritin
--- End quote ---
Actually by discussing the possibility of taking HB inducers with your doctor,you will reach your target much faster(lowering ferritin) because it you reacted positively to the drug, you can decrease bloood transfusion and who knows it could be avoided
manal
Dori:
--- Quote from: Manal on March 11, 2009, 12:06:20 AM ---Dore, in trying to convience you :rotfl
manal
--- End quote ---
Manal,
Let we move this to http://www.thalassemiapatientsandfriends.com/index.php?topic=2612.30 . I will give there an update so soon as I have finished my homework. :bored :grin
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